Chronicles of Caring: Nursing Stories from the Heart of Hemophilia
Survey Finds Interest in Bleeding Disorder Social Work Specialty Credentialing
A Study of Ethical Issues in the Bleeding Disorders Community (BDC)
Factors influencing uptake of evaluation among hemophilia carriers and potential carriers
Attitudes and Perspectives on Ankle Function in People with Hemophilia: A Qualitative Study
Background: For people with hemophilia, mild trauma can cause internal joint bleeding resulting in stiffness and pain, limited range of motion and irreversible bony changes. Ankle pain may occur early in life affecting the…
Addressing issues of women and girls with blood disorders (WGBD) through a collaborative obstetrics/gynecology, adult and pediatric hematology lifespan clinic: a pilot project
Patient Reported Outcomes, Burdens and Experiences (PROBE) Study Data Visualization and Analysis
BAY 94-9027, a Site-Specifically PEGylated Recombinant Factor VIII: Preliminary Results From a Global Comparative Laboratory Field Study
Background: Accurate measurement of factor VIII (FVIII) activity in patients with hemophilia A is important for patient monitoring and treatment decisions. Discrepancies in results using different assays or reagents to measure…
Pharmacokinetics and Prophylaxis Regimens and Relationship to Bleed Outcomes in Patients With Severe Hemophilia A Treated with BAY 81-8973
Background: Factor VIII (FVIII) pharmacokinetic (PK) parameters and other patient characteristics may play a role in effectiveness of FVIII prophylaxis. Objective: A post-hoc analysis was conducted to assess the association…
My Life Our Future Genotyping Days: On the Road Again to New Horizons
Objective: To provide genotyping and enrollment into the My Life, Our Future research repository for individuals with Hemophilia and potential carriers by offering a community based outreach program. Methods:…