Building ‘Zoris in the Sand’ – Best Practice for Bleeding Disorder Capacity Building in the Underserved US Commonwealth of the Northern Mariana Islands
Access to Dental Care for People with Bleeding Disorders: Survey Results of Hemophilia Treatment Centers in the United States
Aim: The goal of this project was to gather data and identify factors affecting access to dental care for people with bleeding disorders in the United States. Methods: The Arizona School of Dentistry and…
Chronicles of Caring: Nursing Stories from the Heart of Hemophilia
Survey Finds Interest in Bleeding Disorder Social Work Specialty Credentialing
A Study of Ethical Issues in the Bleeding Disorders Community (BDC)
Factors influencing uptake of evaluation among hemophilia carriers and potential carriers
Attitudes and Perspectives on Ankle Function in People with Hemophilia: A Qualitative Study
Background: For people with hemophilia, mild trauma can cause internal joint bleeding resulting in stiffness and pain, limited range of motion and irreversible bony changes. Ankle pain may occur early in life affecting the…
Addressing issues of women and girls with blood disorders (WGBD) through a collaborative obstetrics/gynecology, adult and pediatric hematology lifespan clinic: a pilot project
Patient Reported Outcomes, Burdens and Experiences (PROBE) Study Data Visualization and Analysis
BAY 94-9027, a Site-Specifically PEGylated Recombinant Factor VIII: Preliminary Results From a Global Comparative Laboratory Field Study
Background: Accurate measurement of factor VIII (FVIII) activity in patients with hemophilia A is important for patient monitoring and treatment decisions. Discrepancies in results using different assays or reagents to measure…