Unite for Bleeding Disorders will occur in 36 cities across the country with one mission: to raise funds and awareness for our local chapter and help us increase education, support services, and advocacy efforts in our community.More Info
Unite for Bleeding Disorders will occur in 36 cities across the country with one mission: to raise funds and awareness for our local chapter and help us increase education, support services, and advocacy efforts in our community.More Info
Unite for Bleeding Disorders will occur in 36 cities across the country with one mission: to raise funds and awareness for our local chapter and help us increase education, support services, and advocacy efforts in our community.More Info
BioMarin Pharmaceutical Inc. has announced that it has decided to pull the hemophilia A gene therapy ROCTAVIAN (valoctocogene roxaparvovec-rvox) from the United States market. This is following an announcement in October of 2025 that it was looking…
Pathway to Cures (P2C), the venture philanthropy fund of the National Bleeding Disorders Foundation (NBDF), is pleased to announce the appointment of Michael Recht, MD, PhD, MBA, as chief medical and scientific advisor.Building on his tenure as NBDF…
The National Bleeding Disorders Foundation (NBDF) is pleased to announce a new matching grant partnership with Save One Life that will double the community’s impact for children living with bleeding disorders, including hemophilia A, hemophilia B,…
#bdbody {
width: 80%;
margin: 0 auto;
padding: 1rem;
}
/* Mobile and tablet: 100% width */
@media (max-width: 991px) {
#bdbody {
width: 100%;
padding: 1rem; /* optional padding for small screens…
The objective of this study is to collect a large data base of gait parameters on individuals from the age of 12 months to 99 years old who do not have neuromotor deficits. This ongoing study will be the basis of comparison for people with…
The Hemophilia Alliance, The Alliance Pharmacy, and the Hemophilia Alliance Foundation are pleased to support the 2026-2027 Joe Pugliese Educational Award. This award is a scholarship provided annually to individuals diagnosed with an inherited…