The objective of this study is to collect a large data base of gait parameters on individuals from the age of 12 months to 99 years old who do not have neuromotor deficits. This ongoing study will be the basis of comparison for people with…
The Hemophilia Alliance, The Alliance Pharmacy, and the Hemophilia Alliance Foundation are pleased to support the 2026-2027 Joe Pugliese Educational Award. This award is a scholarship provided annually to individuals diagnosed with an inherited…
On Saturday, March 28th, join us live for a national NBDF livestream featuring real stories, expert voices, chapter highlights, and live music, all in one shared space. This event brings together lived experience, advocacy, and…
This program offers scholarship opportunities to students living with a neuromuscular condition, primary immunodeficiency disease, or a bleeding disorder. The InfuCare Rx Scholarship Program helps people with chronic and complex medical conditions…
Federal: NBDF Wraps Up Another Successful Washington DaysLast week, 357 advocates met with 244 different offices on Capitol Hill as part of NBDF’s annual Washington Days to talk about issues important to…
The National Bleeding Disorders Foundation (NBDF), a leading nonprofit supporting people with bleeding disorders, is proud to congratulate Matthew Delaney, government relations manager, on being named to City & State New York’s 2026 Albany 40…
CSL Behring, the biopharmaceutical company behind the hemophilia B gene therapy HEMGENIX ® (etranacogene dezaparvovec-drlb), announced on March 17, 2026, a temporary global stockout of the therapy. This disruption means that some individuals in…
NBDF invites all people who are dedicated to working to achieve greater health equity in the inheritable blood and bleeding disorders community to attend the free Health Equity Virtual Summit on May 11-12th, 2026. With the theme of “Every Hour,…
CHAPTER 1 – Iron Deficiency with and without Anemia in the Inherited Bleeding Disorders Population Experts: Glaivy Batsuli1; Magdalena D. Lewandowska2; Ming Y. Lim3; Amy Dunn4; Kelly…
The National Bleeding Disorders Foundation (NBDF) is excited to announce new 2026 scholarship opportunities available to the bleeding disorders community.Kevin Child Scholarship (KCS)The KCS awards $1,000 to eligible individuals…