Bleeding disorder symptoms can sometimes be worsened or changed by other conditions that often affect women, such as endometriosis or polycystic ovary syndrome. In this session, we'll hear from a medical expert on how co-existing conditions may…
In the past few years, NBDF has shared its vision for 2030 and started to work alongside the community to get there. Join us for a panel discussion and community conversation about the progress to date and what else NBDF needs to consider as it…
With new treatments, remote work options, and an ever-changing economy, work and career decision-making can feel like a whole new calculation these days. This session will cover what to consider about job options when you have a bleeding disorder,…
While many of us likely dabbled in telehealth during the pandemic, digital health is proving to be that and so much more. Come hear about some of the latest innovations in technology that currently or will soon be available for those living with…
This session will discuss current treatment options for rare factor deficiencies and platelet dysfunctions. It will also provide practical tips about what information will foster an effective discussion with your hematology care provider about your…
The new VWD guidelines were published in 2020 and heavily integrate the patient voice. But how can you use these in your conversations with healthcare professionals? This session will take a deeper dive into the specific recommendations, where…
Musculoskeletal ultrasound has gradually become a staple in many hemophilia treatment centers. This unique tool is used not only to detect bleeding episodes but also to follow joint health over years. In this session, we will talk about how MSKUS…
Research generates the evidence needed to improve treatment, care and quality of life. Studies are conducted in phases: identify a topic, develop the research question, design the methods, collect information, analyze the results, and share what was…
NBDF has taken the lead on an initiative to develop a National Research Blueprint (NRB), a community-driven journey to shape the future of research together with researchers, the HTC interdisciplinary team, non-profit organizations, government, and…
NHF leadership opens the 2022 Bleeding Disorders Conference with scripted remarks.