Parental perspectives on gene therapy for children with haemophilia: The Exigency Study
Speaker(s): Kate Khair, PhD
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend…
Genetic Counseling for Ultra-Rare Bleeding Disorders
Speaker(s): Tahnee Causey, MS, CGC
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the latest…
What's At Stake With The Upcoming Elections
Speaker(s): NHF Advocacy Team
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the latest in research,…
Global seroprevalence of pre-existing immunity against AAV5 and other AAV serotypes in people with hemophilia A
Speaker(s): Dr. Robert Klamroth
NHF's Wednesday Webinars are a free education series open to providers and community…
Factor X Awareness Day Virtual Celebration
Don’t miss a special event to celebrate Factor X Awareness Day on Monday, October 10! Starting at 7 p.m. Eastern, this interactive ZOOM celebration will provide opportunities to connect with others,…
Meet NHF's Vice President of Research Strategy, Michelle Witkop! Michelle took her passion for pain management and impactful work and joined NHF. She continues to be a vital part of the NHF community and assisting families and patients.…
FOR IMMEDIATE RELEASEMEDIA CONTACT:Ilana Ostrin212-328-3769iostrin@hemophilia.orgThe Red Tie Soiree Heads to San FranciscoTicket sales for the mid-October event close on Sept. 30September 29, 2022…
Biomarin recently provided an “Update for the Hemophilia Community,” on the ongoing clinical trial program for its investigational hemophilia A gene therapy, valoctocogene roxaparvovec. It comprises a brief overview of current clinical studies,…
Tell us a little bit about yourself!
Hello! My name is Dr. Hongxia Fu. I was a JGP research fellow from 2014 to 2016. I have a Master’s of Structural Engineering from Dalian University of Technology in China and received my PhD…
Tell us a little bit about yourself!
My name is Dr. Mettine H.A. Bos and I am an assistant professor the Leiden University Medical Center. I’ve also worked with the Children’s Hospital of Philadelphia. In 2008, I was admitted…