FOR IMMEDIATE RELEASEOn Saturday, September 10, 2022, BioMarin announced that a hemophilia A patient participating in a gene therapy clinical trial – in which they had been treated with BMN270 – has been diagnosed with pre B cell…
This week, a Peoria Illinois jury awarded reputation-related damages in favor of Dr. Osvaldo Wesly and against the National Hemophilia Foundation. The claim stems from an incident dating back to 2014. Our attorneys plan to appeal the decision.…
NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 45 states that met with legislators and…
Dejah uses her NYLI experience to lead others as she pursues her master’s degree in biology. Learn about her story here!
Tell us about yourself!
My name is Dejah Smith, I’m 24 and I’m a Microbial Genomics Researcher at East Carolina…
Joseph expanded his role at his local NHF chapter with the skills he learned through NYLI. Learn more about his journey!
Tell us about yourself.
Hi! My name is Joseph Mah, I’m 22 and I’m a Biomechanics Analyst at the Colorado Hemophilia and…
Comprehensive Pain Management: the Old and the New
Speaker(s): Dr. Kim Mauer
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the latest…
Patti joined NHF’s team after becoming a member of NYLI in 2018. Learn more about her experience!
Tell us a about yourself and your role at NHF.
Hi! My name is Patti Williford, I’m 24 years old and I’m from Chesapeake, Virginia…
Naomi Miller is the marketing advertising project specialist III at the National Bleeding Disorders Foundation, where she supports marketing, advertising, and sponsored media initiatives to advance NBDF’s mission. She specializes in project…