National Hemophilia Foundation Requests Risk Evaluation and Mitigation Strategy for Pending Gene Therapy Treatments
FOR IMMEDIATE RELEASE July 8, 2022   The patient advocacy organization has formally submitted a citizen’s petition to the Food and Drug Administration   On July 1, the National Hemophilia Foundation (NHF)…
Engineered Regulatory T-cell Therapy for Tolerance to FVIII
Moanaro Biswas, PhD, is currently an Assistant Professor in the Gene and Cell Therapy Program at the Herman B Wells Center for Pediatric Research at Indiana University, Indianapolis. She was appointed to this position in May 2018. She received her…
Joint Health Focus Group
  You’re invited to participate in a free focus group with NHF that will help inspire future education resources related to joint health and pain management. Register now to join an insightful, online discussion on Thursday, July 21…
Most Impactful Meeting in IBD Community Heads to Houston This August
FOR IMMEDIATE RELEASEMEDIA CONTACT:Ilana Ostrin212 328 3769Patients, families and caregivers reunite at the 2022 Bleeding Disorders ConferenceJuly 12, 2022 - HOUSTON, TEXAS - After two years of coming together…
NHF launches new Research Fund in honor of Dr. Marion Koerper
  NEW YORK – Dr. Marion Koerper, a legendary pediatric hematologist, is solidifying her longtime relationship with the National Hemophilia Foundation thanks to a new research fund established in her honor. Elevating a Future of…
New Genotyping Recommendations Issued by MASAC
NHF’s Medical and Scientific Advisory Council (MASAC) has approved a new recommendation on genotyping for people with hemophilia, which were endorsed by the NHF Board of Directors on July 6th. The document provides a brief historic background of…
Patti Williford
Matthew Delaney
Matt Delaney joined NBDF in 2022 as government relations manager, where he assists NBDF chapters in advocacy and policy, and contributes to the foundation’s federal and international work on blood and product safety and supply. As a person who lives…
NHF Employee Highlight - Meet Nick Kallinicou!
Meet NHF's Chapter Development Specialist, Nick Kallinicou! Nick took his passion for meaningful and impactful work and joined NHF. He continues to be a vital part of the NHF community and assisting families and patients. Learn more about…
Amy Dunn
Amy L. Dunn. MD is a Professor of Pediatrics at Nationwide Children's Hospital, the Ohio State University College of Medicine where she is the Director of Pediatric Hematology and directs the Hemostasis Treatment Center. Dr Dunn received her medical…