The U.S. Food and Drug Administration (FDA) has granted Breakthrough Therapy designation to efanesoctocog alfa (BIVV001) for the treatment of individuals with hemophilia A. Investigational breakthrough drugs are placed on a fast-track approval…
Bayer has announced that they are discontinuing the recombinant factor VIII product Kogenate® FS. First approved by the U.S. Food and Drug Administration in 1993, the therapy has carried multiple indications for children and adults with hemophilia A…
The U.S. diabetes epidemic and its impact on the health of tens of millions of Americans has been thoroughly reported on in recent decades, particularly as it relates to the significant impact of body mass index (BMI) as a risk. Yet little is known…
Quantitative measurements of hemophiliac joint tissues by point-of-care musculoskeletal ultrasound
Speaker(s): Dr. Akram Mesleh Shayeb
NHF's Wednesday Webinars are a free education series open to providers and…
VWD and Iron Deficiency
Speaker(s): Bethany Samuelson, MD
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the latest in…
Entry is $40 per person. This includes 2 hours of axe throwing and chances to win prizes throughout the day. Prizes will be awarded to the top throwers, including special recognition for the Grand Champion! Each lane can hold up to 12 throwers.…
The Challenges of Assessing and Managing Pain
Speaker(s): Dr. Nathalie Roussel
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the latest in…
Dr. Staber received her undergraduate e degree in biochemistry from the University of Iowa. She received her MD from the Carver College of Medicine at the University of lowa. She received strong mentorship under the guidance of Drs. Paul McCray and…
The Summer Retreat takes the place of the past Adult and Family Retreats. Over the weekend, community members will connect, learn, and have fun!
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The BDNFC Ultra Rare Bleeding Disorders & VWD Education Day will provide education and connection for individuals affected by platelet disorders, ultra-rare factor deficiencies, and VWD.
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