Formerly the National Hemophilia Walk, Unite For Bleeding Disorders is a nationwide event that raises funds and awareness for all bleeding disorders. Participants raise money, locally and nationally, for crucial research, advocacy and education by…
Celebrate Mother’s Day while supporting the Western Pennsylvania Bleeding Disorders Foundation! Join us on Sunday, May 8th from 3-5 pm. Local artist, Angela Dragich, will provide step-by-step instruction on how to create a beautiful spring scene on…
Multiyear Factor VIII Expression after Adeno‐associated Virus Gene Transfer for Hemophilia A
Speaker(s): Dr. Lindsey George
Dr. Lindsey George delivers a Wednesday Webinar sharing a multiyear FVIII expression…
Specific guidance is lacking for delivery planning in terms of how high a factor level should be achieved for pregnant women with von Willebrand disease (VWD) who, by the third trimester, do not have von Willebrand factor (VWF) (or factor VIII)…
Finding Financial Support
Speaker(s): Amy Niles and Ayesha Azam from the PAN Foundation
Amy Niles and Ayesha Azam from the PAN Foundation deliver a Wednesday Webinar sharing ways to find financial support for…
Implementation Science
Speaker(s): Lena Volland, PT, DPT
Lena Volland joins us to give an update on implementation science.
NHF's Wednesday Webinars are a free education series open to providers and community…
Using Real World Data to Inform Clinical Research, featuring ATHN’s new Robust Health App
Speaker(s): Dr. Michael Recht and Moses Miles of the American Thrombosis & Hemostasis Network
The American Thrombosis…
The second ‘Collaborative Learning Exchange’ is:
“Shared Decision Making in the Age of Novel Therapies for Hemophilia.”
This activity will be held live on Thursday, May 5, 2022, from 3:00-4:00 pm EDT / 2:00-3:00 pm CDT / 1:00-2:00 pm…
The Physician Partners with Purpose was created to provide a centralized opportunity for hematologists to support the inheritable blood disorders community.
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NHF’s Medical and Scientific Advisory Council (MASAC) recently issued six new documents, all of which were adopted by NHF’s Board of Directors on April 27, 2022.
MASAC Document #267 contains a series of detailed recommendations relevant to…