The EveryLife Foundation for Rare Diseases has established the #RAREis Scholarship Fund to help adults with rare diseases in a variety of educational pursuits, regardless of treatment status. Thanks to the support of Amgen, one-time awards of $5,000…
Ahead of National Doctors Day (March 30), NHF CEO and hematologist Dr. Len Valentino shared his insights for this important day celebrating medical professionals.
What advice do you have for aspiring…
NHF sat down with NYLI member Patti W. to hear more about why she joined NYLI and what others should consider when filling out their application. Visit NYLI to learn more and fill out your own application.
Why did you…
NHF sat down with NYLI member Garrett H. to hear more about why he joined NYLI and what others should consider when filling out their application. Visit NYLI to learn more and fill out your own application.
Why did you…
Family Camp creates magical, life-changing experiences for individuals, families, and children living with a bleeding disorder. Here we focus on two key goals: increasing and enhancing self-infusion skills and building connections within our…
Virtual or in-person, Get Cookin’ with the ladies in the bleeding disorder community! We invite you to join us and multiple women from across the nation for this HYBRID EVENT!
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This 3-hour tour suitable for ages 8+ retraces the journey of Boulder’s first gold seekers while cruising the paved paths along the beautiful Boulder Creek.
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We are excited to announce that Colorado Education Empowerment Days will consist of a week long mix of in-person and virtual learning and connection opportunities April 24-29, 2022. Visit our website for details!
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The effect of emicizumab prophylaxis on long‐term self‐reported physical health in persons with haemophilia A without factor VIII inhibitors in the HAVEN 3 and HAVEN 4…