Clinical trials are key to advancing safe and effective treatments for bleeding disorders. They are an important step in the FDA drug-approval process and provide researchers with invaluable data about a drug’s effectiveness and side effects. With…
Objective:
While a new generation of therapies for patients with Hemophilia A are available, it is unclear what patient characteristics, perceptions, and barriers are associated with the decision to switch FVIII replacement…
YOU are your most important advocate in the health care system. If you have a child, you are also their most important advocate. In order to be a strong advocate for yourself and/or your child, it is important for you to learn how to make your…
Mantenerse activo es imprescindible para las personas con trastornos hemorrágicos, ya que ayuda a conservar y recuperar la salud de las articulaciones, a prevenir problemas de movilidad y a mejorar la calidad de vida. Únase a esta presentación para…
Muchas personas con trastornos hemorrágicos consideran que el dolor relacionado con la hemorragia y el daño articular afectan a su calidad de vida. Esta sesión mejorará la comprensión de cómo el dolor afecta a las personas con trastornos…
Tanto si nunca ha tenido una hemorragia articular como si ha tenido más de las que le gustaría contar, no es demasiado tarde para aprender más formas de prevenir futuros daños articulares. En esta presentación aprenderá pequeños pasos para…
This section contains responses to FAQs from individuals living with an inheritable bleeding disorder or for those who have experienced symptoms and suspect they might have one. Explore this page to learn more about the more common inherited…