NHF Statement on World Hemophilia Day
FOR IMMEDIATE RELEASE Media Contact: Ilana Ostrin iostrin@hemophilia.org 212-328-3769 April 17, 2022 STATEMENT FROM DR. LEONARD A. VALENTINO (NHF CEO) ON WORLD HEMOPHILIA DAY On World Hemophilia Day…
NHF Announces Spring Webinar Lineup
NHF Announces Spring Webinar Lineup Webinars occur on Wednesdays at 2 p.m. Eastern and are broadcast live April 1, 2022 New York, NY--The National Hemophilia Foundation (NHF) is pleased to announce its upcoming lineup in the Wednesday…
Dynamics of Hemarthrosis & Vascular Remodeling: Long-term impact of hypertension and joint bleeds for People Living with Hemophilia
National Hemophilia Foundation (NHF) Research Journal Club (RJC) April 2022: Dynamics of Hemarthrosis & Vascular Remodeling: Long-term impact of hypertension and joint bleeds for People Living with HemophiliaJoin Dr. von…
NHLBI Grant Supports Scientific Research to Enhance Hemophilia A Gene Therapies
A group of investigators are embarking on a new research program designed to unpack some of the outstanding fundamental questions associated with current approaches to gene therapy for hemophilia A. While multiple gene therapies are currently in…
B+B Fly Fishing Clinic
This Fly-Fishing Clinic is designed for anyone new to the sport of fly fishing, you want to improve your time on the water, need a little refresher, or you just want to spend some one-on-one time with experts. Space is limited to 25 fishers so…
B+B Garden of the Gods Rock Climbing
Join Backpacks + Bleeders as we take on a new adventure – rock climbing at the Garden of the Gods! Grab your climbing shoes (tennis shoes, chacos, etc) and join us in Colorado Springs for this outdoor climb! Climbers age 7+ (with an accompanying…
The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation
2022 Unite Walk (Reno, NV)
Formerly the National Hemophilia Walk, Unite For Bleeding Disorders is a nationwide event that raises funds and awareness for all bleeding disorders. Participants raise money, locally and nationally, for crucial research, advocacy and education by…
2022 Unite Walk (Portland, OR)
Formerly the National Hemophilia Walk, Unite For Bleeding Disorders is a nationwide event that raises funds and awareness for all bleeding disorders. Participants raise money, locally and nationally, for crucial research, advocacy and education by…
2022 Unite Walk (Kansas/Missouri)
Formerly the National Hemophilia Walk, Unite For Bleeding Disorders is a nationwide event that raises funds and awareness for all bleeding disorders. Participants raise money, locally and nationally, for crucial research, advocacy and education by…