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Home
  • Who We Are
    • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

          Stay informed with the latest updates for the inheritable blood disorders community.

          Medical
          Emergency Department Guidelines Now Available in Multiple Formats
          Emergency Department Guidelines Now Available in Multiple Formats
          Feb 12, 2020
          NBDF & Community
          How FDA is Putting the Patient Voice at the Forefront of Gene Therapy Clinical Trials for Hemophilia
          How FDA is Putting the Patient Voice at the…
          Feb 12, 2020
          Medical
          Novo Nordisk Announces Launch of New Factor VIII Therapy
          Novo Nordisk Announces Launch of New Factor VIII Therapy
          Feb 10, 2020
          NBDF & Community
          NHF Awarded 4-star Rating from Charity Navigator
          NHF Awarded 4-star Rating from Charity Navigator
          Feb 5, 2020
          NBDF & Community
          NHF, WFH, EHC Monitor Coronavirus Impact on Bleeding Disorders Community
          NHF, WFH, EHC Monitor Coronavirus Impact on Bleeding Disorders Community
          Feb 5, 2020
          Medical
          FDA Releases Guidance Documents for Gene Therapies
          FDA Releases Guidance Documents for Gene Therapies
          Jan 31, 2020
          NBDF & Community
          NHF and the Green Park Collaborative Launch Project to Measure Mental Health Outlook
          NHF and the Green Park Collaborative Launch Project to Measure…
          Jan 29, 2020
          NBDF & Community
          NHF/HFA Seek Feedback on Product Safety and Communication
          NHF and HFA Hold Safety Summit
          Jan 28, 2020
          Medical
          Study Looks at Postpartum Hemorrhage in Type 3 VWD
          Study Looks at Postpartum Hemorrhage in Type 3 VWD
          Jan 24, 2020
          NBDF & Community
          National Hemophilia Foundation Announces Next CEO
          National Hemophilia Foundation Announces Next CEO
          Jan 17, 2020
          NBDF & Community
          Patient Groups Urge Supreme Court to Swiftly Take Up Health Care Case
          Patient Groups Urge Supreme Court to Swiftly Take Up Health Care Case
          Jan 16, 2020
          Medical
          Turkish Researchers Look at Self Esteem in Hemophilia Teens
          Turkish Researchers Look at Self Esteem in Hemophilia Teens
          Jan 15, 2020
          Medical
          Medscape Launches Activity for Emergency Department Providers
          Medscape Launches Activity for Emergency Department Providers
          Jan 10, 2020
          Industry
          BioMarin Announces Three Year Updates on Investigational Gene Therapy
          BioMarin Announces Three Year Updates on Investigational Gene Therapy
          Jan 9, 2020
          Industry
          Pfizer Takes Over Development of Gene Therapy Candidate from Sangamo
          Pfizer Takes Over Development of Gene Therapy Candidate from Sangamo
          Jan 8, 2020

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