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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

Stay informed with the latest updates for the inheritable blood disorders community.

Industry
Precision BioLogic Announces FDA Clearance of Inhibitor Screening Kit
Precision BioLogic Announces FDA Clearance of Inhibitor Screening Kit
Mar 26, 2019
Industry
Roche to Acquire Spark Therapeutics
Roche to Acquire Spark Therapeutics
Feb 25, 2019
Industry
FDA Approves Long-Acting Factor FVIII Product for Hemophilia A
FDA Approves Long-Acting Factor FVIII Product for Hemophilia A
Feb 22, 2019
Industry
Sigilon Releases Study Data on Hemophilia Cell Therapy
Catalyst Reports Positive Trial Updates for Subcutaneous Therapy for…
Feb 14, 2019
Industry
Bayer Responds to NHF-HFA Joint Statement
Roche Announces Donation of Hemlibra® to WFH Humanitarian Aid Program
Feb 6, 2019
Industry
uniQure Announces First Hemophilia B Patient Treated in Phase III Gene Therapy Trial
uniQure Announces First Hemophilia B Patient Treated in Phase…
Feb 6, 2019
Industry
Sangamo Announces First Patient Treated in Hemophilia B Gene Therapy Trial
Sangamo Announces First Patient Treated in Hemophilia B Gene Therapy Trial…
Dec 17, 2018
Industry
uniQure Announces Initial Data Showing Positive Early Results from Hemophilia B Gene Therapy
uniQure Announces Initial Data Showing Positive Early…
Nov 19, 2018
Industry
Bayer receives FDA approval for hemophilia A treatment Jivi®
Bayer receives FDA approval for hemophilia A treatment Jivi®
Aug 30, 2018
Industry
Catalyst Updates on Phase 2/3 Trial of Subcutaneous Therapy
Catalyst Updates on Phase 2/3 Trial of Subcutaneous Therapy
Aug 17, 2018
Industry
New Medscape Activity Makes the Case for Gene Therapy
Sangamo Reports Positive Preliminary Data from Hemophilia Gene Therapy…
Aug 9, 2018
Industry
Spark Reports Progress on Hemophilia A Gene Therapy
Spark Reports Progress on Hemophilia A Gene Therapy
Aug 8, 2018
Industry
Court Issues Final Judgement in Shire/Roche Patent Lawsuit
Court Rules on Shire/Roche Preliminary Injunction
Aug 8, 2018
Industry
Pfizer Initiates First Stage of Phase 3 Hemophilia B Gene Therapy Trial
Pfizer Initiates First Stage of Phase 3 Hemophilia B Gene Therapy Trial
Jul 17, 2018
Industry
Catalyst’s Trial Update Includes Reports of Antibody Responses
Catalyst’s Trial Update Includes Reports of Antibody Responses
Jun 18, 2018

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