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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

Stay informed with the latest updates for the inheritable blood disorders community.

Industry
Bayer Submits Application for Long-Acting FVIII Candidate
Bayer Submits Application for Long-Acting FVIII Candidate
Sep 6, 2017
Industry
Sangamo and Pfizer Announce First Patient Treated in Hemophilia A Gene Therapy Trial
Sangamo and Pfizer Announce First Patient Treated in Hemophilia…
Sep 5, 2017
Industry
FDA Approves Additional Vial Sizes for Nuwiq®
Sep 5, 2017
Industry
Pfizer to Build Gene Therapy Facility in North Carolina
Pfizer to Build Gene Therapy Facility in North Carolina
Aug 17, 2017
Industry
Spark Reports Preliminary Data from Hemophilia A Gene Therapy Trial
Spark Reports Preliminary Data from Hemophilia A Gene Therapy Trial
Aug 14, 2017
Industry
UniQure Escalates Hemophilia B Gene Therapy Manufacturing Site
UniQure Escalates Hemophilia B Gene Therapy Manufacturing Site
Aug 4, 2017
Industry
BioMarin Reports Continued Progress in Clinical Trial for Hemophilia A Gene Therapy
BioMarin Reports Continued Progress in Clinical Trial for…
Aug 1, 2017
Industry
Octapharma USA Funds National Camp Exchange for Bleeding Disorders Camps
Octapharma USA Funds National Camp Exchange for Bleeding Disorders Camps
Jul 13, 2017
Industry
Alnylam and Sanofi Report Positive Trial Updates for Fitusiran
Alnylam and Sanofi Report Positive Trial Updates for Fitusiran
Jul 11, 2017
Industry
Shire Submits IND Application for Hemophilia A Gene Therapy Candidate
Shire Submits IND Application for Hemophilia A Gene Therapy Candidate
Jul 10, 2017
Industry
Genentech Patient Foundation Responds to NHF-HFA Letter
Genentech Announces Progress in Two Phase III Emicizumab Studies
Jul 5, 2017
Industry
FDA Accepts License Application and Grants Priority Review for Emicizumab
FDA Approves Biologics License Application for Novo Nordisk’s…
Jun 2, 2017
Industry
Investigational Therapy for Hemophilia A Comes up Short in Trial
Investigational Therapy for Hemophilia A Comes up Short in Trial
Jun 2, 2017
Industry
Genentech Provides Updates on Hemlibra Product Particles
Grifols Increases Commitment of Factor VIII Donations
Apr 17, 2017
Industry
Genentech Announces Positive Interim Trial Results for Emicizumab
Genentech Announces Positive Interim Trial Results for Emicizumab
Apr 17, 2017

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