NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Factors influencing uptake of evaluation among hemophilia carriers and potential carriers
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
The WFH Annual Global Survey: Gender Distribution
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
Patient Reported Outcomes, Burdens and Experiences (PROBE) Study Data Visualization and Analysis
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Lessons Learned in the Assessment of Pain in US Adults With Hemophilia in the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study: Importance of More Formalized Discussions Around Pain in the Comprehensive Care Setting
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
My Life Our Future Genotyping Days: On the Road Again to New Horizons
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Prevalence of gross motor delays in boys with hemophilia ages 4-14: single site study
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Characterization of Women and Girls with Hemophilia Treated in the US from A Claims Database
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
A Cumulative Review on Four Decades of Thrombo-Embolic Events Reported with the Use of Activated Prothrombin Complex Concentrate (APCC) in Congenital Haemophilia
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
Verification of Effective Zika Virus Reduction by Production Steps Used in theManufacture of Plasma-Derived Medicinal Products
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Efficacy, safety and pharmacokinetics of once-weekly prophylactic emicizumab (ACE910) in pediatric persons (<12 years) with hemophilia A with inhibitors: interim analysis of single-arm, multicenter, open-label, phase 3 study (HAVEN 2)
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
PROTECT VIII: Can Eligibility for Less-Frequent Prophylaxis Dosing Regimens Be Predicted by Patient Characteristics?
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Staying on TRAQ: Determining transition readiness from pediatric to adult care in adolescents and young adults with hemophilia
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Perceptions of Vulnerability, Protective Behaviors, and Reported Stress in Mothers of Sons with Hemophilia
AWARDED/PRESENTED: 2017
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Long-term safety and prophylactic efficacy of once-weekly subcutaneous administration of ACE910 in Japanese hemophilia A patients with and without FVIII inhibitors: Interim results of the extension study of a phase I study
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Update on a phase 1/2 open-label trial of BAX 335, an adeno-associated virus 8 (AAV8) vector-based gene therapy program for hemophilia B
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
A Novel Anti-Tissue Factor Pathway Inhibitor Antibody, BAY 1093884, Prevents Bleeding in Hemophilia A Mice
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Assessment of motor proficiency in people with bleeding disorders using the Bruininks-Oseretsky Test of Motor Proficiency, Second Edition (BOT-2™)
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Kids B-LONG: Safety, Efficacy, and Pharmacokinetics of Long-Acting Recombinant Factor IX Fc Fusion Protein (rFIXFc) in Previously Treated Children with Hemophilia B
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Building ‘Zoris in the Sand’ – Best Practice for Bleeding Disorder Capacity Building in the Underserved US Commonwealth of the Northern Mariana Islands
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Real-world dosing and patient characteristics of rFVIIIFc in hemophilia A patients
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products