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      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
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      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
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    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
  • Give
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NBDF’s Established Initiatives & Impact >

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Dr. Michael Recht Appointed Chief Medical and Scientific Advisor for Pathway to Cures

Dr. Michael Recht Appointed Chief Medical and Scientific Advisor for Pathway to Cures
  • Read more about Dr. Michael Recht Appointed Chief Medical and Scientific Advisor for Pathway to Cures
Pathway to Cures (P2C), the venture philanthropy fund of the National Bleeding Disorders Foundation (NBDF), is pleased to announce the appointment of Michael Recht, MD, PhD, MBA, as chief medical and scientific advisor.

BioMarin Pulls ROCTAVIAN Hemophilia A Gene Therapy from U.S. Market

BioMarin Pulls ROCTAVIAN Hemophilia A Gene Therapy from U.S. Market
  • Read more about BioMarin Pulls ROCTAVIAN Hemophilia A Gene Therapy from U.S. Market
The gene therapy treatment will cease availability at the end of May 2026.

NBDF Honors the Life of Lynn Malec, MD, MSc

NBDF Honors the Life of Lynn Malec, MD, MSc
  • Read more about NBDF Honors the Life of Lynn Malec, MD, MSc
The bleeding disorders community mourns the loss of a beloved physician, researcher, and friend.

Government Relations Update - January 2026

Government Relations Update - January 2026
  • Read more about Government Relations Update - January 2026
Federal Government avoids shutdown, key bleeding disorders programs funded, and State legislatures get started!

NBDF’s Research Grant Cycle is Now Accepting Applications

NBDF’s Research Grant Cycle is Now Accepting Applications
  • Read more about NBDF’s Research Grant Cycle is Now Accepting Applications
Funding for basic science, clinical studies, innovative technologies, and clinical development is available.

NBDF’s Commitment to Shared Decision-Making and Evidence-Based Access in Gene Therapy

NBDF’s Commitment to Shared Decision-Making and Evidence-Based Access in Gene Therapy
  • Read more about NBDF’s Commitment to Shared Decision-Making and Evidence-Based Access in Gene Therapy
We believe treatment decisions should be individualized, clinically appropriate, and informed by both the available evidence and patient preferences.

NBDF Announces Research Grant Awardees

NBDF Announces Research Grant Awardees
  • Read more about NBDF Announces Research Grant Awardees
The Excellence Fellowship, Judith Graham Pool Fellowship, and Sanofi-sponsored Career Development Award support multidisciplinary bleeding disorders research

Government Relations Update - December 2025

Government Relations Update - December 2025
  • Read more about Government Relations Update - December 2025

Federal Updates: 

House of Representatives Reintroduces HELP Copays Act 

NBDF and WFH statement on severe adverse event with marstacimab rebalancing agent for hemophilia

NBDF and WFH statement on severe adverse event with marstacimab rebalancing agent for hemophilia
  • Read more about NBDF and WFH statement on severe adverse event with marstacimab rebalancing agent for hemophilia
The statement details reported adverse event, ongoing investigation, and plans to update the community.

NBDF Announces 2025 Kevin Child Scholarship Winner

NBDF Announces 2025 Kevin Child Scholarship Winner
  • Read more about NBDF Announces 2025 Kevin Child Scholarship Winner
The Kevin Child Scholarship is awarded annually to a student with hemophilia A or B who is either a high school senior, or someone enrolled in a vocational-technical school, college or university, or pursuing a post-secondary education.

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