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Home
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    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners Program)
      • Rare Coagulation Disorders Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
      • Planned Giving
    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
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NBDF’s Established Initiatives & Impact >

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HYMPAVZI® Receives Expanded Indication from FDA

HYMPAVZI® Receives Expanded Indication from FDA
  • Read more about HYMPAVZI® Receives Expanded Indication from FDA
HYMPAVZI® (marstacimab-hncq) is a laboratory-engineered monoclonal antibody that targets an anticoagulant protein known as tissue factor pathway inhibitor. It is administered subcutaneously once a week using a pen-like device.

First-Ever Recommendations Call for Routine Iron Screening in People with Bleeding Disorders

First-Ever Recommendations Call for Routine Iron Screening in People with Bleeding Disorders
  • Read more about First-Ever Recommendations Call for Routine Iron Screening in People with Bleeding Disorders
MASAC recommends routine iron screening for people with bleeding disorders to detect iron deficiency early and improve care.

CMS Narrows Exemptions from New Medicaid Work Requirements

CMS Narrows Exemptions from New Medicaid Work Requirements
  • Read more about CMS Narrows Exemptions from New Medicaid Work Requirements

On June 1st, 2026, the federal Centers for Medicare and Medicaid Services (CMS) released its long-awaited rule providing guidance to state Medicaid programs on how to implement the Medicaid work reporting requirements and eligibility limits

Government Relations Update - May 2026

Government Relations Update - May 2026
  • Read more about Government Relations Update - May 2026
Government Relations Update: May 2026 | Key advocacy, policy, and funding updates affecting the bleeding disorders community.

FED UP Act Targets Barriers Faced by Women and Girls with Bleeding Disorders

FED UP Act Targets Barriers Faced by Women and Girls with Bleeding Disorders
  • Read more about FED UP Act Targets Barriers Faced by Women and Girls with Bleeding Disorders
FED UP Act aims to improve diagnosis, care, and research equity for women and girls with bleeding disorders.

Government Relations Update - April 2026

Government Relations Update - April 2026
  • Read more about Government Relations Update - April 2026
Government Relations Update: April 2026 | Key advocacy, policy, and funding updates affecting the bleeding disorders community.

Jacob Murdock to Oversee Nebraska and Nevada Chapters of NBDF

Jacob Murdock to Oversee Nebraska and Nevada Chapters of NBDF
  • Read more about Jacob Murdock to Oversee Nebraska and Nevada Chapters of NBDF
Jacob Murdock will lead NBDF Nevada and Nebraska, boosting collaboration, efficiency, and support for bleeding disorders.

NBDF Idaho and Snake River Hemophilia Chapter Merge to Form Statewide Bleeding Disorders Organization

NBDF Idaho and Snake River Hemophilia Chapter Merge to Form Statewide Bleeding Disorders Organization
  • Read more about NBDF Idaho and Snake River Hemophilia Chapter Merge to Form Statewide Bleeding Disorders Organization
Combined chapter will expand support, education, and advocacy for Idaho’s bleeding disorders community
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