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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

  1. Home

New Paper Features Hemophilia Gene Editing Lexicon

New Paper Features Hemophilia Gene Editing Lexicon
  • Read more about New Paper Features Hemophilia Gene Editing Lexicon
Gene editing for hemophilia represents an emerging novel therapy with potentially significant benefits for patients. Learn more about a new lexicon created for patients and caregivers to better understand these complex therapies and to help inform shared decision making efforts with their healthcare providers.

Slowdown of Gene Therapy Research Spurs Call to Action

Slowdown of Gene Therapy Research Spurs Call to Action
  • Read more about Slowdown of Gene Therapy Research Spurs Call to Action
Global organizations unite to urge collaborative approaches to reducing barriers to the advancement of care.

Government Relations Update - April 2025

Government Relations Update - April 2025
  • Read more about Government Relations Update - April 2025
Advocates push bleeding disorders policy, spotlighting women and Medicaid in key 2025 actions.

ASH Led Initiative Focuses on Greater Representation in Hematology Clinical Trials

ASH Led Initiative Focuses on Greater Representation in Hematology Clinical Trials
  • Read more about ASH Led Initiative Focuses on Greater Representation in Hematology Clinical Trials
ASH explores barriers to underrepresentation in hematology clinical trials. Learn about their initiative for greater diversity, equity, and inclusion.

NFRC Features von Willebrand Disease Resources

NFRC Features von Willebrand Disease Resources
  • Read more about NFRC Features von Willebrand Disease Resources
NBDF's Neil Frick Resource Center is highlighting von Willebrand disease resources for healthcare providers and affected individuals. Explore these resources today!

Hemophilia News Spotlights NBDF's World Hemophilia Day Initiatives

Hemophilia News Spotlights NBDF's World Hemophilia Day Initiatives
  • Read more about Hemophilia News Spotlights NBDF's World Hemophilia Day Initiatives
Hemophilia News Today highlights NBDF’s World Hemophilia Day 2025 efforts, spotlighting the “Access for All: Women and Girls Bleed Too” campaign. Discover how to support awareness, wear red, and donate.

Bio.News Features NBDF for World Hemophilia Day

Bio.News Features NBDF for World Hemophilia Day
  • Read more about Bio.News Features NBDF for World Hemophilia Day
Bio.News reports on NBDF's World Hemophilia Day initiatives, emphasizing equal care for women and girls with bleeding disorders.
Wednesday Webinar Silencing the Clotting Challenge: siRNA's Role in Hemophilia
23 Apr

Silencing the Clotting Challenge: siRNA’s Role in Hemophilia

Apr 23, 2025 - Apr 23, 2025

Take Action: Protect Bleeding Disorder Programs

Take Action: Protect Bleeding Disorder Programs
  • Read more about Take Action: Protect Bleeding Disorder Programs
Urgent: Federal health programs for bleeding disorders face cuts. Contact your lawmakers to protect CDC funding and vital support.

Government Relations Update - March 2025

Government Relations Update - March 2025
  • Read more about Government Relations Update - March 2025
Major HHS restructuring impacts CDC blood disorder programs. See how NBDF and advocates are responding. Plus state updates.

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