Skip to main content
 
Paid Advertisement.
 NBDF does not endorse products or manufacturers.
Leaderboard Ad

Top area menu

  • News
  • Events
Home
menu burger
  • Give
  • Subscribe

Main navigation

  • Who We Are
  • Bleeding Disorders A-Z
  • Educational Programs
  • Advocacy
  • Research
  • Healthcare Professionals
  • Community Resources
  • Make a Difference
  • Our Story
  • Mission & History
  • What We Do
  • What Do We Value?
  • Health Access
  • NBDF Reports
  • Financial Statements
  • Media Newsroom
  • Educate to Elevate
  • The National Hemophilia Foundation Has a New Name
  • The Red Thread: 75th Anniversary Celebration
  • Our Team
  • Staff
  • Board of Directors
  • MASAC
  • Meet the NYLI
  • Nursing Working Group
  • Physical Therapy Working Group
  • Social Work Working Group
  • LEE Research Advisory Council
  • Our Partners
  • Partners In Progress
  • The ACT Initiative
  • Red Tie Society
  • CDC Coop Agreement
  • Pathway to Cures
  • Careers
  • What Do We Value?
  • Career Opportunities
  • Volunteer Opportunities
  • Overview
  • Fast Facts
  • What is a Bleeding Disorder?
  • History
  • Types of Bleeds
  • Inhibitors
  • Women and Bleeding Disorders
  • Types
  • Hemophilia A
  • Hemophilia B
  • Von Willebrand Disease
  • Other Factor Deficiencies
  • Inherited Platelet Disorders
  • Treatment
  • Comprehensive Medical Care
  • MASAC For You
  • Treatment Guidelines (MASAC)
  • Current Treatments
  • Innovative Therapies
  • Clinical Trials
  • Shared Decision-Making
  • Hemophilia Treatment Centers
  • Healthcare Coverage
  • Choosing an Insurance Plan
  • Private Insurance
  • Public Insurance
  • Health Insurance Toolkit
  • Education
  • Bleeding Disorders Conference
  • Inhibitor Education
  • Steps for Living
  • Online Education
  • Rare Bleeding Disorders
  • Von Willebrand Disease
  • Mental Health
  • Gene and Innovative Therapies
  • Women
  • Educational Programming
  • Clotting Cascade
  • Training
  • Youth Leadership (NYLI)
  • Outreach
  • THRIVE
  • THRIVE - en español
  • Undiagnosed
  • Guías Culturales
  • Federal Priorities
  • Access to Care
  • Federal Programs
  • Medicare
  • Medicaid
  • Blood & Blood Product Safety
  • Make All Copays Count
  • State Priorities
  • Utilization Management
  • Patient Out-of-Pocket Expenses
  • Medicaid
  • How You Can Take Action
  • Voices for Policy Change!
  • Register to Vote
  • Washington Days
  • Advocacy Do’s and Don’ts
  • 6 Steps for Grassroots Advocacy
  • Tell Your Story
  • Managed Care & Payers
  • Collaborating on Coverage
  • Quality of Care Guidelines
  • CME/CE Webcast Series
  • Educational Web Portal
  • Quality Improvement & Cost Management
  • Research Projects
  • Foundation Research
  • Funded by Foundation
  • Presented at Our Conference
  • Research Journal Club
  • Research Roundtable
  • Clinical Trial Essentials
  • coreHem Mental Health Tool
  • Fund Your Research
  • Judith Graham Pool Postdoctoral Research Fellowship
  • NBDF-Sanofi Career Development Award
  • Nursing Excellence Fellowship
  • Physical Therapy Excellence Fellowship
  • Social Work Excellence Fellowship
  • Community Voices in Research
  • What is CVR?
  • How & Why Should I Participate?
  • Impact on Research
  • Frequently Asked Questions
  • Login to CVR
  • Bleeding Disorders Research Collaborative
  • What is the Bleeding Disorders Research Collaborative?
  • The BDRC Structure and Research Priorities
  • Lived Experience Experts (LEEs) Leading the Way
  • How to Get Involved
  • Our Journey Together
  • BDRC Resources
  • Guidelines on Care
  • Comprehensive Care
  • MASAC Documents
  • MASAC Minutes
  • Products Licensed (US)
  • Emergency Management
  • Snapshots of VWD Guidelines
  • Education & Resources
  • NBDF-Takeda Clinical Fellowship Program
  • NBDF’s Collaborative Learning Exchange
  • Online Education for Providers
  • Live & Online Learning (Partners)
  • Rare Coagulation Resource Room
  • Peer-reviewed Journals
  • NBDF Publications
  • Other Associations
  • Allied Healthcare
  • Nursing
  • Physical Therapy
  • Social Work
  • Other Interdisciplinary Healthcare Providers
  • Request Information
  • Contact Us
  • The Neil Frick Resource Center
  • Read Our Publications
  • Subscribe for Email Updates
  • Get HemAware Magazine
  • Newsletter Archive
  • Wednesday Webinar Series
  • Resources Near You
  • Chapters
  • Hemophilia Treatment Centers
  • Clinical Trials
  • Bleeding Disorders Camps
  • Community Voices in Research
  • Financial Assistance
  • Scholarships
  • Patient Assistance Programs
  • Donate
  • Donate Now
  • Donor Advised Funds
  • Donate Securities or Cryptocurrency
  • Give Monthly
  • Planned Giving
  • Join Us
  • Become a Corporate Partner
  • Bleeding Disorders Awareness Month
  • Find a Walk
  • Participate in Research/CVR
  • Why Give?
  • More than a Donation
  • Create Your Own Fundraiser
  • Fundraise on Social Media
  • Run in a Marathon
  • Matching Gifts
Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
      • Planned Giving
    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
  • Give
  • Subscribe
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.
Medical
Webinar Banner
Support Networks and Clinical Trials the Focus of Upcoming FDA Webinar
Oct 11, 2024
Medical
Durability of FactorVIII Focus of New Hemophilia A Gene Therapy Study
CHOP Researchers Investigate Durability of Hemophilia A Gene Therapy
Oct 11, 2024
BDC Connections
Two women speaking at the podium for the 2024 Awards of Excellence at BDC
NBDF's 2024 Awards Ceremony Honors Outstanding Contributions and…
Oct 9, 2024
NBDF & Community
International Plasma Awareness Week Logo
NBDF Supports International Plasma Awareness Week: Oct. 7-11
Oct 2, 2024
NBDF & Community
World Hemophilia Day 2025 Graphic in Blue
WFH Unveils 2025 World Hemophilia Day Theme: "Access for…
Oct 2, 2024
Advocacy & Legislative
Government Relations Update - April 2023
Government Relations Update - September 2024
Oct 1, 2024
NBDF & Community
A creative purple banner that says the word "Reflections"
#StrongerTogether: NBDF Supports Reflections Atlanta’s Groundbreaking…
Oct 1, 2024
BDC Connections
Speakers - Policy for Change
Policy in Action: Capitol Connection Energizes Bleeding Disorders…
Sep 27, 2024
BDC Connections
BDC 2024 - People dancing on the dance floor
Blooms, Beats, and Beaming Faces: BDC's Grand Finale Lights Up the Night
Sep 26, 2024
BDC Connections
Redesigned Roadmap: NBDF's "Steps for Living" Transforms Patient Education
Redesigned Roadmap: NBDF's "Steps for Living" Transforms…
Sep 26, 2024
BDC Connections
Income inequality
Unpacking the Past: A Lesson in Racial Wealth Disparities at BDC 2024
Sep 26, 2024
BDC Connections
BDC Lived Experience Experts Session Speakers
From Patients to Pioneers: How Lived…
Sep 26, 2024
Advocacy & Legislative
vials
NovoNordisk Manufacturing Issue Affects Key Hemophilia Treatments
Sep 25, 2024
BDC Connections
Charting New Waters in Women's Bleeding Disorders Care
Charting New Waters in Women's Bleeding Disorders Care
Sep 15, 2024
BDC Connections
VWD: A Glimpse into Tomorrow's Treatments
VWD: A Glimpse into Tomorrow's Treatments
Sep 15, 2024

Pagination

  • First page
  • Previous page
  • …
  • Page 6
  • Page 7
  • Page 8
  • Page 9
  • Current page 10
  • Page 11
  • Page 12
  • Page 13
  • Page 14
  • …
  • Next page
  • Last page

Contact us

1230 Avenue of the Americas 16th Floor, New York, NY 10020, United States
212.328.3700
212.328.3777

About

  • What We Do
  • Our Team
  • Careers
  • Request Information

Resources

  • Chapters
  • HTC Search
  • Clinical Trials
  • Scholarships
  • Camp Near You
  • CVR

Legal

  • Privacy Policy
  • Medical Disclaimer
  • Gift Acceptance
  • Conflict of Interest
  • Whistleblower
  • Translation Policy

Give

  • Donate
  • Fundraise
  • Other Ways to Give
  • Why Give?

NBDF White

Candid Seal Platinum Charity Navigator

©  National Bleeding Disorders Foundation
All rights reserved.