Stay informed with the latest updates for the inheritable blood disorders community.

          NBDF & Community
          This national survey is designed to assess patient demographics, their satisfaction with the HTC’s core treatment team, its services, and care processes.
          Third National Patient Satisfaction Survey Launching Soon!
          NBDF & Community
          NHF Wednesday Webinars 2021
          Wednesday Webinar February 2021 Speakers
          Advocacy & Legislative
          The special enrollment period lasts from February 15th to May 15th, 2021.
          ACA Marketplaces to Reopen
          Industry
          The phase 3 trial currently includes 134 participants with hemophilia A, all of whom have received a single dose of the gene therapy.
          BioMarin Announces Positive Phase 3 Study Data for Valoctocogene…
          NBDF & Community
          Ampoule bottle assembly line banner
          Recall Notice: Voluntary Recall Mononine Coagulation Factor IX (Human)
          Medical
          Medscape Activity Designed to Prepare Clinicians for Arrival of Gene…
          Medical
          These guidelines are an important step in our quest to address the difficulties individuals go through to obtain an accurate, timely diagnosis, and appropriate treatment.
          New Guidelines on the Diagnosis and Management of VWD
          NBDF & Community
          JML Fellowship Launches
          New Research Fellowship Available from NHF
          NBDF & Community
          Looking Ahead to 2021
          NBDF & Community
          Letter to the NHF Community
          A Message from NHF President and CEO Leonard A. Valentino, MD
          COVID-19
          COVID-19 Vaccination Guidance from NHF, WFH, EAHAD, and…
          Advocacy & Legislative
          Washington D.C. - Capitol Building
          NHF Applauds Congressional Enactment of The Hemophilia SNF Access Act
          Industry
          FDA Puts Clinical Hold on uniQure's Hope B Trial
          FDA Puts Clinical Hold on uniQure's Hope B Trial
          NBDF & Community
          Boardroom
          NHF Announces Three New Board Members
          Medical
          Newly Launched Medscape Activity Looks at Gene Therapy and Nursing
          Newly Launched Medscape Activity Looks at Gene Therapy and Nursing