Stay informed with the latest updates for the inheritable blood disorders community.

          Medical
          Newly Updated MASAC Documents Dedicated to Females Affected by Bleeding Disorders, Pregnancy, VWD
          Updated MASAC Documents Address Females Affected by Bleeding…
          NBDF & Community
          Nominations Open for the 2021 NHF Awards of Excellence
          NBDF & Community
          NHF
          A Refocused Mission for NHF Emphasizes Research
          Industry
          New Program Looks to Standardize Care for Patients with Rare Diseases
          New Program Looks to Standardize Care for Patients with Rare Diseases
          NBDF & Community
          NHF Wednesday Webinars 2021
          March 2021 Wednesday Webinar Schedule
          Industry
          FDA Partially Rescinds Added Indications for Two FIX Products
          Industry
          Blood Cells Image
          Sanofi Revises Fitusiran Dosing Regimen to Mitigate Risk of Vascular…
          Industry
          Spark Announces Preliminary Data from Investigational Gene Therapy Trial
          Industry
          Octapharma Announces Final Results of Nuwiq® Study
          NBDF & Community
          This national survey is designed to assess patient demographics, their satisfaction with the HTC’s core treatment team, its services, and care processes.
          Third National Patient Satisfaction Survey Launching Soon!
          NBDF & Community
          NHF Wednesday Webinars 2021
          Wednesday Webinar February 2021 Speakers
          Advocacy & Legislative
          The special enrollment period lasts from February 15th to May 15th, 2021.
          ACA Marketplaces to Reopen
          Industry
          The phase 3 trial currently includes 134 participants with hemophilia A, all of whom have received a single dose of the gene therapy.
          BioMarin Announces Positive Phase 3 Study Data for Valoctocogene…
          NBDF & Community
          Ampoule bottle assembly line banner
          Recall Notice: Voluntary Recall Mononine Coagulation Factor IX (Human)
          Medical
          Medscape Activity Designed to Prepare Clinicians for Arrival of Gene…