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Home
  • Who We Are
    • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

          Stay informed with the latest updates for the inheritable blood disorders community.

          NBDF & Community
          NHF Marks the 40th Anniversary of the HIV Epidemic
          Jun 3, 2021
          Industry
          Female scientist conducting research in lab with goggles and gloves
          BioMarin Presents Positive Safety and Efficacy Data for their…
          May 27, 2021
          Industry
          Gene Therapy Trial Data Suggests Efficacy in the Presence of Antibodies
          Gene Therapy Trial Data Suggests Efficacy in the Presence of Antibodies
          May 25, 2021
          NBDF & Community
          Press Release: National Patient & Caregiver Survey Shows that COVID-19 Has Exacerbated Treatment Affordability Challenges & Health Inequities for Vulnerable Americans
          COVID-19 Exacerbates Treatment Affordability Challenges & Health…
          May 19, 2021
          NBDF & Community
          Gene Helix for Gene Therapy Image
          New Inhibitor Study Using MLOF Research Repository Data Published
          May 19, 2021
          NBDF & Community
          Reminder – Apply for 2021 Scholarships Now!
          Reminder – Apply for 2021 Scholarships Now!
          May 17, 2021
          Industry
          Gene Therapy Licensing Agreement Between uniQure and CSL Now in Effect
          Gene Therapy Licensing Agreement Between uniQure and CSL Now in Effect
          May 7, 2021
          Medical
          Study Looks at Neuraxial Anesthesia and Postpartum Complications in Hemophilia
          Study Looks at Neuraxial Anesthesia and Postpartum Complications in…
          May 5, 2021
          NBDF & Community
          This national survey is designed to assess patient demographics, their satisfaction with the HTC’s core treatment team, its services, and care processes.
          Take the National HTC Patient Satisfaction Survey
          May 3, 2021
          NBDF & Community
          Wednesday Webinars
          May 2021 Wednesday Webinars
          Apr 30, 2021
          Industry
          Gene Therapy Helix
          uniQure Announces End of Clinical Hold on Hemophilia B Gene Therapy…
          Apr 27, 2021
          NBDF & Community
          New Chief Scientific Officer Joins NHF
          New Chief Scientific Officer Joins NHF
          Apr 23, 2021
          NBDF & Community
          DEI - Artwork of Diverse Group of People Men Women
          A Message from NHF President and CEO
          Apr 21, 2021
          NBDF & Community
          NHF Wednesday Webinars 2021
          April 2021 Webinar Webinar Lineup
          Apr 1, 2021
          Advocacy & Legislative
          How the American Rescue Plan Can Affect Your Healthcare Coverage
          How the American Rescue Plan Can Affect Your Healthcare Coverage
          Apr 1, 2021

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