Stay informed with the latest updates for the inheritable blood disorders community.

          Press Releases
          Watch the Wednesday Webinar Series
          NHF Announces Fall 2022 Wednesday Webinar Schedule
          NBDF & Community
          Patti Williford
          Meet Former NYLI Member, Patti Williford!
          NBDF & Community
          Joseph Mah
          Meet Former NYLI Member, Joseph Mah!
          NBDF & Community
          Former NYLI member Dejah Smith
          Meet Former NYLI Member, Dejah Smith!
          Medical
          Clinical Trial Gene Double Helix
          Update for the Hemophilia Community
          Medical
          Person interacting with computer and taking notes
          Virtual Grand Round Series to Focus on Hemophilia Gene Therapy
          Industry
          Red Blood Cells
          FDA Grants Priority Review for Sanofi’s BIVV001
          Industry
          Doctor asking questions to patient about care
          Rare Factor X Deficiency Survey Shows Disparity in Care
          NBDF & Community
          NHF Show Daily - Wrap-up Issue Monday August 29, 2022
          Press Releases
          bdc award winners 2022
          NHF Announces its Awards of Excellence 2022 Winners
          Industry
          Gene Helix for Gene Therapy Image
          BioMarin Receives Conditional Approval in Europe for Gene Therapy
          Medical
          NBDF and HFA Address Concerns on WHO's Recommendation of Cryoprecipitate
          PPTA Posts Statement on Monkeypox and Plasma Protein Therapies
          Industry
          BioMarin Presents Abstract on Vector DNA Transmission Risk at ISTH
          BioMarin Presents Abstract on Vector DNA Transmission Risk at ISTH
          Industry
          New Prophylaxis Approval for REBINYN®
          New Prophylaxis Approval for REBINYN®
          Peer-Reviewed Journal Summaries
          Gene Therapy Helix
          Paper Features Q&A Resource on Shared Decision Making and Gene Therapy