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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

Stay informed with the latest updates for the inheritable blood disorders community.

COVID-19
NHF Letter to the Community on COVID-19
NHF Letter to the Community on COVID-19
Mar 5, 2020
NBDF & Community
MASAC Letter to the Community Regarding the Coronavirus Disease 2019
MASAC Letter to the Community Regarding the Coronavirus Disease 2019
Mar 3, 2020
NBDF & Community
Community Statement from Genentech on Hemlibra supply amid 2019-nCoV
Community Statement from Genentech on Hemlibra supply amid 2019-nCoV
Feb 28, 2020
NBDF & Community
Joint Statement on Recall of VONVENDI Lots
Joint Statement on Recall of VONVENDI Lots
Feb 27, 2020
NBDF & Community
Takeda announced a pharmacy-level recall of two lots of VONVENDI
Takeda announced a pharmacy-level recall of two lots of VONVENDI
Feb 26, 2020
NBDF & Community
Letter to the NHF Community
Letter to Our Community
Feb 18, 2020
NBDF & Community
How FDA is Putting the Patient Voice at the Forefront of Gene Therapy Clinical Trials for Hemophilia
How FDA is Putting the Patient Voice at the…
Feb 12, 2020
NBDF & Community
NHF Awarded 4-star Rating from Charity Navigator
NHF Awarded 4-star Rating from Charity Navigator
Feb 5, 2020
NBDF & Community
NHF, WFH, EHC Monitor Coronavirus Impact on Bleeding Disorders Community
NHF, WFH, EHC Monitor Coronavirus Impact on Bleeding Disorders Community
Feb 5, 2020
NBDF & Community
NHF and the Green Park Collaborative Launch Project to Measure Mental Health Outlook
NHF and the Green Park Collaborative Launch Project to Measure…
Jan 29, 2020
NBDF & Community
NHF/HFA Seek Feedback on Product Safety and Communication
NHF and HFA Hold Safety Summit
Jan 28, 2020
NBDF & Community
National Hemophilia Foundation Announces Next CEO
National Hemophilia Foundation Announces Next CEO
Jan 17, 2020
NBDF & Community
Patient Groups Urge Supreme Court to Swiftly Take Up Health Care Case
Patient Groups Urge Supreme Court to Swiftly Take Up Health Care Case
Jan 16, 2020
NBDF & Community
NHF and HFA Announce Safety Summit
NHF and HFA Announce Safety Summit
Nov 5, 2019
NBDF & Community
NHF Announces 2019 Kevin Child Scholarship Winner
NHF Announces 2019 Kevin Child Scholarship Winner
Oct 24, 2019

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