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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

Stay informed with the latest updates for the inheritable blood disorders community.

Medical
Healthcare Provider Webinars on Females with Bleeding Disorders Recertified
Healthcare Provider Webinars on Females with Bleeding Disorders…
Dec 6, 2019
Medical
Updated MASAC Guidelines on Emergency Department Management Approved
Updated MASAC Guidelines on Emergency Department Management Approved
Dec 6, 2019
Medical
Two Gene Therapy Medscape Activities Recertified
Two Gene Therapy Medscape Activities Recertified
Nov 8, 2019
Medical
Study Will Examine Brain Development in Young People with Hemophilia
Study Will Examine Brain Development in Young People with Hemophilia
Nov 7, 2019
Medical
Genentech Notice on COVID-19, Hemlibra®, and Laboratory Assays
Octapharma’s Wilate® Receives Expanded Approval from FDA
Oct 10, 2019
Medical
Donna Boone, PT Passes Away at 86
Donna Boone, PT Passes Away at 86
Sep 20, 2019
Medical
Symposium Offers Providers Excellent Gene Therapy Learning Opportunity
Symposium Offers Providers Excellent Gene Therapy Learning Opportunity
Sep 18, 2019
Medical
WFH Lead Research Points to Higher Global Hemophilia Prevalence
WFH Lead Research Points to Higher Global Hemophilia Prevalence
Sep 13, 2019
Medical
Dedicated Hemotologist and Patient Advocate Dies at 95
Dedicated Hemotologist and Patient Advocate Dies at 95
Aug 20, 2019
Medical
MASAC Issues New Document on Liver Biopsies in Gene Therapy
MASAC Issues New Document on Liver Biopsies in Gene Therapy
Aug 14, 2019
Medical
Comparing Adherence and Physical Activity in Hemophilia A Patients
Comparing Adherence and Physical Activity in Hemophilia A Patients
Jul 2, 2019
Medical
Further Response from Bayer on Kogenate® FS Recall
CSL Recalls Single Lot of Mononine®
Jun 11, 2019
Medical
St. Jude/WFH to Bring Hemophilia B Gene Therapy Trials to Developing World
St. Jude/WFH to Bring Hemophilia B Gene Therapy Trials to Developing World…
May 23, 2019
Medical
Researchers Look at Clinical Outcomes in FXIII Babies
Researchers Look at Clinical Outcomes in FXIII Babies
May 14, 2019
Medical
CHOP Researchers Study Factor VIIa Prophylaxis Through Gene Transfer
CHOP Researchers Study Factor VIIa Prophylaxis Through Gene Transfer
Apr 26, 2019

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