Stay informed with the latest updates for the inheritable blood disorders community.

Industry
Two researchers in a lab looking at a computer screen
Five Year Hemgenix® Hemophilia B Trial Data Published in NEJM
Advocacy & Legislative
Government Relations Update - April 2023
Government Relations Update – November 2025
Industry
Flowing red blood cells
Interim Data for Investigational Sub-Q VWD Therapy Presented at ASH
NBDF & Community
A muslim woman speaking with a healthcare provider
Facts About Inhibitors Now Available in Arabic!
NBDF & Community
A caregiver holding someones hands
NBDF Highlights Resources for Caregivers of People with Bleeding Disorders…
NBDF & Community
A doctor sitting across from a woman reviewing documents and charts
NBDF’s 2025 Research Roundtable: Advancing Bleeding…
Medical
A doctor across from her patient
Women and Girls with Hemophilia Booklet Now Available in Arabic
NBDF & Community
Red Blood cells moving in bloodstream
Spotlight on SeraGene, a Pathway to Cure’s Portfolio Company
Medical
A provider speaking to a patient
MASAC Approves Recommendations on Non-Factor Hemophilia…
Advocacy & Legislative
Government Relations Update - April 2023
Government Relations Update - October 2025
Peer-Reviewed Journal Summaries
Multiple gene helix and chromosomes
WFH Publishes First Ever Guidelines for Hemophilia AAV Gene Therapy
Industry
Gene Helix for Gene Therapy Image
BioMarin Announces ROCTAVIAN Out-Licensing Plans for Hemophilia A Therapy…
NBDF & Community
Three women smiling together
Explore Resources for Women and Girls with Bleeding Disorders
NBDF & Community
Group of people at a conference table
NBDF’s Pathway to Cures: Spotlight on the Investment Committee
Medical
A woman watching a webinar
IHS Hosts New Webinar Series to Tackle Clinical Issues in Bleeding…