NBDF’s Collaborative Learning Exchange series on “Emerging Clinical Issues – Improved Clinical Management of Women and Girls Diagnosed with a Bleeding Disorder" was intended for physicians (MD/DO), physician assistants, nurse practitioners, and other clinicians with prescriptive authority for individuals living with von Willebrand Disease, hemophilia A, or hemophilia B.
Inherited bleeding disorders are under-recognized as causes of bleeding in women, girls, and people with the propensity to menstruate (WGPPM). NBDF, along with a group of key providers, developed this series to create opportunities for prescribers to discuss the treatment and management concerns specific to bleeding disorders in WGPPM.
"Assessing the Wellbeing of Women with Bleeding Disorders: Focus on Bone and Mental Health"
A new NBDF Collaborative Learning Exchange, “Assessing the Wellbeing of Women with Bleeding Disorders: Focus on Bone and Mental Health” was held live on June 30, 2025. It features illustrative case studies, presentations, and discussions about the need for regular screening for anxiety/depression and bone health in women with inherited bleeding disorders.
The following activities were held as live virtual interactive events in late 2022 and 2023.
Additional background:
Establishing the proper diagnosis of an inherited bleeding disorder has important implications for acute management of bleeding, recommendations for invasive procedures, not to mention pregnancy and delivery management, family planning, and other testing.
Healthcare providers and particularly medical prescribers need to be cognizant of how to diagnose bleeding disorders and interpret the laboratory testing results for WGPPM. It is also essential that their knowledge encompasses the therapeutic developments and life cycle implications that are unique to WGPPM for managing a bleeding disorder, including menstruation, pregnancy, delivery, and menopause. A robust application of the shared decision-making model is also critical so that providers are prepared to discuss the possible risks and benefits of care options with their patients.
"VWD Diagnostic Testing Challenges for Women, Girls, and People with the Propensity to Menstruate (WGPPM)" was held live on 11/17/22.
Insights on the challenges to diagnosis of von Willebrand Disease (VWD) in people with the propensity to menstruate were given. Currently available tests and newer VWD assays were reviewed and the pre-analytic variables that impact coagulation test results for WGPPMs with family history and/or symptoms of a bleeding disorder were discussed further.
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"Provider and Patient Communications for Shared Decision-Making when Providing Healthcare for Women, Girls, and People with the Propensity to Menstruate (WGPPM)" was held live on 1/24/23.
A comparison of ‘shared decision-making’ (SDM) models for patient-clinician communication was presented. Barriers to employing SDM in clinical practice were discussed, particularly with identifying where individual bias exists. Insights were shared on how clinicians could incorporate key components of SDM into their treatment conversations with WGPPM of different ages.
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"VWD Treatment Across the Lifespan for Women, Girls, and People with the Propensity to Menstruate (WGPPM)" was held live on 4/13/23.
A summary of VWD treatment needs for WGPPM across their lifespans was presented, including treatment options for heavy menstrual bleeding and perioperative management for cardiovascular procedures. Gender-affirming care considerations in the context of VWD were also discussed.
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"Clinical Challenges in the Management of Pregnancy and Delivery in Women, Girls, and People with the Propensity to Menstruate (WGPPM)" was held live on 5/11/23.
We reviewed the maternal implications of an underlying bleeding disorder along with the risk of life-threatening bleeding at time of delivery and post-partum for WGPPM. The key components to hemostatic evaluation prior to delivery and management options antepartum were covered, including appropriate use of epidural analgesia for WGPPM with underlying bleeding disorders.
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Please note: Each of these events in their recorded formats are no longer available
for CME/CE credit.