The National Hemophilia Foundation will be holding our quarterly Board of Directors meeting on Thursday, May 28th at 7:00 PM EDT. The Board of Directors meeting is open to the public.
Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased risk for individuals with hemophilia and a family history (FH) of high blood…
On March 11, 2020 the World Health Organization (WHO) declared the novel coronavirus (COVID-19) outbreak a global pandemic. Our life and lifestyle have been changed dramatically by the pandemic. You may ask yourself, what exactly is a pandemic? The…
Dear Community Members,
The National Hemophilia Foundation’s priority has always been the health and safety of the bleeding disorders community. As the COVID-19 pandemic unfolds, it is clear that in the face of an unprecedented situation, we need…
I know many of you are overwhelmed with often-conflicting information on coronavirus and COVID-19. As a doctor and researcher, the health of the bleeding disorder community is my highest priority. Every Thursday, I will be sending you vetted,…
The National Hemophilia Foundation (NHF) and Hemophilia Federation of America (HFA) are seeking comments from the bleeding disorders community on the executive summary of the NHF/HFA Safety Summit convened in Washington, DC, on January 29-30th, 2020…
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Policymakers in Washington, DC and in states have been active in responding to the COVID-19 emergency over the last several weeks and NHF has been equally active in advocating on behalf of the bleeding disorders community. COVID-19 is having a wide…