The national tragedy of HIV/AIDS in the hemophilia community catapulted NBDF into the spotlight as the prime advocate for a safer blood supply and blood products. While blood and blood product safety has dramatically improved over the last 20 years…
NBDF federal priorities focus on access to affordable, quality treatments and healthcare that meet the needs of the bleeding disorders community.
Affordable Care Act
On March 23, 2010, President Obama signed comprehensive health care reform,…
The bleeding disorders community has long advocated for creation of and funding for several federal programs that focus on research, surveillance, and treatment services provided to people with bleeding disorders.
Health Resources and…
Medicare is the federal insurance program that provides coverage for the elderly (people aged 65 and older) and people who are disabled. NBDF advocates for Medicare policies that benefit the bleeding disorders community in part because Medicare is…
Medicaid, the largest health insurance program in the United States, is a joint federal-state program that provides health insurance for low-income individuals. The federal government currently matches at least fifty percent of state Medicaid…
Commercial health insurance plans, as well as state Medicaid programs, employ various strategies to reduce the costs of medical care and prescription drugs. These strategies include Step Therapy, Tiered Formularies, and Prior Authorization. NBDF…
Patient Out-of-Pocket ExpensesFor patients with chronic diseases like bleeding disorders out of pocket expenses for prescription drugs are a significant concern. The average annual cost of clotting factor therapies for a person with severe…