Great Lakes Hemophilia Foundation’s (GLHF) 13th annual Milwaukee’s Best Bloody will be held Sunday, April 13 from 11:30 am until 2:30 pm at Wisconsin State Park. Attendees can sample the best Bloody Marys the Milwaukee area has to offer. Bars…
Join NBDF’s Research Team for an exclusive look at upcoming grant opportunities for researchers and allied health professionals on Wednesday, February 26, 2025, at 2 PM EDT. This webinar will cover available funding, eligibility criteria, and tips…
Factsheets Hemophilia Factsheet (2024) Videos Wednesday Webinar on Bleeding Disorder Resources, Referrals, and Educational Tools – (6/26/25) Other Bleeding Disorder Resource ListsThe Neil Frick Resource Center also maintains a…
Today, we're sharing a powerful letter from Emily Ouellette, Executive Director of the Bleeding Disorders Alliance of North Dakota (BDAND), featured on February 18, 2025, in the Minot Daily News. Emily's letter highlights proposed legislation…
🎙 Tune In! NBDF's Bill Robie Talks HB 1216 & Rx CostsBill Robie, NBDF’s Senior Director of Government Relations, joins Afternoons Live with Tyler Axness to discuss why supporting HB 1216—a crucial bill tackling prescription drug…
NBDF is delighted to dedicate this edition of HANDI Highlights* to the upcoming Rare Disease Day® (RDD), which is observed every year on February 28th (or 29th in leap years) all around the world. According to rarediseaseday.…
MEDICAL ADVISORY Released: February 24, 2025, 7:56 PM ESTMedical Advisory: ALTUVIIIO LOT #EY0330 OVERVIEW Sanofi is conducting a voluntary recall of ALTUVIIIO [antihemophilic factor (…
Pfizer, Inc. has announced that they are ceasing global development and commercialization of Beqvez™, the company’s hemophilia B gene therapy product.Beqvez was designed with bioengineered adeno-associated virus (AAVs) vectors to introduce…