Ankle Replacements and Bleeding Disorders: What's a PT to do?
Non-Factor Therapies: Where Are We Now?
Moderator: Jessie Pindilli, BSN, RN University of Wisconsin Hospital & Clinics UWHC Comprehensive Program for Bleeding Disorders   Speaker: Jennifer Maahs, RN-BC, MSN…
Beyond the Diagnosis: The Impact of Bleeding Disorders on Women & Girls
Moderators: Kaitlin Barnett, LCSW Social Worker, Mount Sinai Hospital Hemophilia Treatment Center Lucy Ramirez, MSW, LCSW Clinical Social Worker, Rush Hemophilia & Thrombophilia Center…
Public Health: Aging
NOT AVAILABLE FOR CREDIT Speakers will discuss a range of topics including new international guidelines for the diagnosis and management of hereditary hemorrhagic telangiectasia (HHT), mental and emotional health challenges in…
Health Equity and Access to HTCs
Moderator: Len Valentino, MD, President and CEO, National Hemophilia Foundation   Speakers: Melissa S. Creary, Ph.D., MPH Assistant Professor of Health Management & Policy Senior Director,…
VWD: The Realities of Your Period
Powerful Partnerships
Intersections: Muslim Cultures & Bleeding Disorders
An evaluation of health utility and quality-of-life in hemophilia: a systematic literature review
Objective: Hemophilia may negatively impact a patient’s health utility and quality of life (QoL). Health state utility values (HSUVs) and QoL are important inputs to the evaluation of novel treatment being developed in hemophilia…
You Hold the Key: How Your Experiences Can Shape Research