Revisions: 132
Standards and Criteria for the Care of Individuals with Bleeding Disorders
“Hemophilia Treatment Centers (HTCs) provide value to people with hemophilia and other congenital coagulation disorders, their families and caregivers,…
Treatment methods for patients with hemophilia now include prophylactic or immune tolerance regimens that require frequent regular infusions of clotting factor concentrate, often beginning at an early age. If such regimens are undertaken, central…
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ResearchNational Association of Social WorkersThe NASW website is a prime site for staying on top of social work trends, research and news. By putting "research" in the search area at the top right of the site, social workers…
Medicaid and CHIP (Children's Health Insurance Program) are joint federal and state public health insurance programs that cover roughly 1 in 5 Americans, including low-income families and individuals, children, parents, pregnant women, seniors, and…
What is Hemophilia BHemophilia B, also called factor IX (FIX) deficiency or Christmas disease, is a genetic disorder caused by missing or defective factor IX, a clotting protein. Although it is passed down from parents to children, about 1/3 of…
Introduction/Background:
Maintenance of oral health is frequently challenging for US adults with a bleeding disorder. Underlying causes are due mainly to (1) lack of dental insurance and (2) lack of knowledge…
In this section, you will find psychosocial and educational topics, including: Adoption, aging, alternative therapies, health reform, insurance and school issues. Article topics are arranged alphabetically with hyperlinks. ADOPTION…
Bleeding disorders are a group of disorders that share the inability to form a proper blood clot. Symptoms include extended bleeding after injury, surgery, trauma, or menstruation. Sometimes the bleeding is spontaneous, without a known or…
The National Bleeding Disorders Foundation created the ACT initiative to meet the imperative need to build our national capacity to maintain, and achieve where lacking, access to care for people with bleeding disorders. Access to care means:…
FACTOR XI DEFICIENCY (Hemophilia C, Plasma Thromboplastin Antecedent (PTA) Deficiency, Rosenthal Syndrome)Factor XI (FXI) deficiency, also called hemophilia C, plasma thromboplastin antecedent deficiency and Rosenthal syndrome, was first recognized…