The National Bleeding Disorders Foundation created the ACT initiative to meet the imperative need to build our national capacity to maintain, and achieve where lacking, access to care for people with bleeding disorders. Access to care means:…
Introduction/Background:
Maintenance of oral health is frequently challenging for US adults with a bleeding disorder. Underlying causes are due mainly to (1) lack of dental insurance and (2) lack of knowledge…
Federal: NBDF Wraps Up Another Successful Washington DaysLast week, 357 advocates met with 244 different offices on Capitol Hill as part of NBDF’s annual Washington Days to talk about issues important to…
Background:
Many hemophilia treatment centers (HTCs) have a comprehensive care clinic in which a variety of providers see patients with bleeding disorders. Registered dental hygienists (RDHs) are, in some cases,…
Objective:
To assess the dental experiences of patients with von Willebrand disease for the purpose of developing guidelines for screening and dental management.
Methods:
A…
Government Relations Update – August 2024 Federal Medicaid Unwinding As part of the COVID-19 public health emergency (PHE), state Medicaid programs were not allowed to conduct…
Aim:
The goal of this project was to gather data and identify factors affecting access to dental care for people with bleeding disorders in the United States.
Methods:
The Arizona School of…
Objectives:
To determine the relationship between von Willebrand disease (vWD), dental plaque, and gingival bleeding in women with vWD and to determine the oral hygiene habits and dental care…
A new review published in the European Journal of Haematology describes the challenges inherent in managing both bleeding and excessive clot risk in patients with primary immune thrombocytopenia (ITP). Primary ITP is a rare…
This Bleeding Disorders Awareness Month, hematologists Ronak Mistry, DO and Dan Hausrath, MD start a conversation around their experiences being early career physicians, and launching a podcast. Watch their video and read a transcript.
Learn more…