NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
HEMO-milestones tool increases assessment of self-management competency and plan for skill building in patients with hemophilia
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Global Knowledge and Confidence Assessment of Hemophilia Clinical Practice Approaches Among Pediatricians
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Adopting and Piloting the Patient Safety and Clinical Pharmacy Services Collaborative (PSPC) breakthrough model to transform and significantly improve adherence, improve health status and bring patients under control in the Hemophilia Community
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Recombinant von Willebrand factor in severe von Willebrand disease: a prospective clinical trial
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Access to Dental Care for People with Bleeding Disorders: Survey Results of Hemophilia Treatment Centers in the United States
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Changes in Child and Parent Ratings of Health-Related Quality of Life Among Children With Hemophilia A in the KIDS A-LONG study
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Varying Regimens in Hemophilia A Patients Undergoing Immune Tolerance: Removing Barriers to Enhance Outcomes
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Efficacy of a Recombinant Factor IX Investigational Product, IB1001 (trenonacog alfa) for Perioperative Management in Hemophilia B Patients
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Adherence influences annualized bleeding rate during prophylaxis with turoctocog alfa: results from the guardian™1 trial
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Hospitalization for Acute Bleeding Events among Individuals with von Willebrand Disease (VWD) in the United States
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
BAY 81-8973: Pharmacokinetic Parameters in Adolescents, Adults, and Children With Severe Hemophilia A
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
A Novel Anti-Tissue Factor Pathway Inhibitor Antibody, BAY 1093884, Restores Hemostasis in Induced Hemophilia A Rabbits With Reduced Thrombogenic Potential
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Prevalence of high BMI in school age children with hemophilia
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Initial Observations From the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study: Patient-Reported Outcome Assessments in US Adults With Hemophilia
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Impact of FVIII CRM-positive status on the immunogenicity of FVIII in the hemophilia A mouse model
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Efficacy and safety of pdFX, a new high-purity factor X concentrate, in patients with mild to severe hereditary factor X deficiency undergoing surgery
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Increase or Maintenance of Physical Activity in Patients Treated with Recombinant Factor IX Fc Fusion Protein (rFIXFc) in the B-LONG and Kids B-LONG Studies
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Target Joint Spontaneous annualized bleed rate (sABR) Reduction: results from a pivotal trial of once weekly BeneFIX (nonacog alfa) in Hemophilia B subjects
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Relative Health Status of Young Adults in the Hemophilia Utilization Group Studies (HUGS)
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
An Evaluation of the Switch from Standard Factor VIII Prophylaxis to Prophylaxis with an Extended Half-Life, Pegylated, Full-length Recombinant Factor VIII (BAX 855)
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials