The American Thrombosis and Hemostasis Network (ATHN) is the steward of extensive hemostasis and thrombosis data and analytic resources. The ATHN Affiliate Network consists of over 145 health care entities providing programs and services to individuals impacted by these conditions. Through its partnership with ATHN Affiliates, ATHN routinely collects demographic, clinical, and genetic data for the ATHNdataset, a de-identified, voluntary data set. The ATHNdataset is a rich source of data available for clinicians and clinical researchers to identify, explore, and advance knowledge around issues affecting the inherited bleeding disorders community with the goal of transforming care. Recently, ATHN received a grant to determine whether data contained in the ATHNdataset could be utilized, in conjunction with machine learning and artificial intelligence, to predict those people with hemophilia (PwH) who may experience a poor outcome. Over the past decade, as therapies for hemophilia have rapidly improved, both in both clinical efficacy and convenience, no consensus as to the definition of “poor outcome” exists.
Awarded/Presented
Tags
N/A
CVR
Researchers
Jarren Santos, Martin Chandler, Christine Gerber, Moses Miles, Maria Santaella, Michelle Witkop, Michael Recht