Awarded/Presented
Tags
N/A
Collaboration/Team Models
Researchers
Michelle Witkop, DNP, National Hemophilia Foundation; Michael Recht, MD, PhD, American Thrombosis and Hemostasis Network;
Donna DiMichele, MD, Consulting, LLC; Leonard Valentino, MD, National Hemophilia Foundation
Donna DiMichele, MD, Consulting, LLC; Leonard Valentino, MD, National Hemophilia Foundation
The inherited bleeding disorders (IBD) community has witnessed significant advances in recent years thanks to novel therapeutic advances and technologies and improved diagnostic proficiency.
Yet important gaps persistent, particularly for those with rare disorders and underserved populations, including women with IBD.
A new initiative led by the National Hemophilia Foundation (NHF) and shaped by the voices of the patient community is underway to address this gap.
Our goal: to design and implement a national research blueprint that outlines actionable strategies to address the most important needs within the community and opportunities to accelerate progress through coordinated collaboration.