Awarded/Presented
Tags
CVR
Researchers
Jacqueline Limjoco, Courtney D Thornburg
Clinicians at US Hemophilia Treatment Centers completed semi-structured interviews about their experience with shared decision-making and provided feedback on a clinician shared decision-making tool prototype. These data highlight the need for shared decision-making tools for haemophilia A gene therapy. Key information to include in the tool are safety, efficacy, cost and detailed information on the gene therapy process.