Awarded/Presented
Tags
N/A
Collaboration/Team Models
Researchers
Michelle L. Witkop; Maria E. Santaella
Knowing the importance of including the consumers voice in the future of research, the National Hemophilia Foundation (NHF) partnered with the software healthcare analytics company; ArborMetrix, to develop a cloud-based platform; NHF’s Community Voices in Research (CVR), formerly known as MyBDC.
Through CVR, NHF will be able to send out longitudinal surveys and follow participants for a minimum of 5 years.