Awarded/Presented
Tags
N/A
CVR
Researchers
Rosaura P. Vidal, MPH; Maria E. Santaella, RN-BC, MSN, CPHON®; Michelle Witkop, DNP, FNP-BC
Individuals and families in the bleeding disorders community and those who experience other chronic rare conditions have not typically been engaged in patient reported registries or in clinical studies during the initial study design phase. The more participants enrolled in CVR the stronger the data and the community. CVR will establish an audience to draw in for opportunities to participate in patient-reported outcome research and other efforts as well as providing the opportunity to educate and inform individuals and families in the bleeding disorders community.
(2021), Abstract. Res Pract Thromb Haemost, 5: e12554. https://doi.org/10.1002/rth2.12554