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Home
  • Who We Are
    • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

          Stay informed with the latest updates for the inheritable blood disorders community.

          Giving Shoesday
          Giving Tuesday is November 28
          Nov 8, 2023
          Medical
          Study Results Encourage Discussion of Therapeutic Options…
          Nov 6, 2023
          NBDF & Community
          Employee Highlight - Meet Brendan Hayes!
          Nov 1, 2023
          NBDF & Community
          The Importance of Telehealth
          Oct 31, 2023
          Press Releases
          National Bleeding Disorders Foundation raises $200…
          Oct 31, 2023
          Medical
          Pathway to Cures
          Recent News from Pathway to Cures
          Oct 24, 2023
          Medical
          Depressed Man
          International Hemophilia Survey Suggests…
          Oct 13, 2023
          Industry
          Takeda Announces Trial Results on Investigational Therapy for Ultra Rare Blood Disorder
          Investigational T-Cell Therapy for Hemophilia A…
          Oct 12, 2023
          Medical
          New Study Looks at Hemophilia Survival Rate Disparities
          Oct 11, 2023
          Peer-Reviewed Journal Summaries
          Red Blood Cells
          Paper Highlights Treatment for Ultra-Rare Type 1 Plasminogen Deficiency
          Oct 3, 2023
          Advocacy & Legislative
          Judge's gavel on the table
          Court Rules in Favor of Patients regarding Copay Accumulator Adjustor…
          Oct 3, 2023
          Advocacy & Legislative
          Government Relations Update - April 2023
          Government Relations Update - August & September 2023
          Oct 2, 2023
          Medical
          MASAC Prophylaxis Recommendations
          Two New MASAC Documents Focus Substance Use Facilities…
          Sep 15, 2023
          NBDF & Community
          Wooden blocks with people icon on blue background
          Lead NBDF's Mission: CEO Opportunity
          Aug 30, 2023
          Advocacy & Legislative
          Concerns Over Payer Matrix's Self-Identification as Patient Advocacy Company
          Concerns Over Payer Matrix's Self-Identification as Patient Advocacy…
          Aug 29, 2023

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