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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

Stay informed with the latest updates for the inheritable blood disorders community.

Industry
Biogen Reports ELOCTATE™ Shows Positive Implications for Quality of Life
Biogen Reports ELOCTATE™ Shows Positive Implications for Quality of Life
Dec 14, 2016
Industry
Genentech Patient Foundation/Medvantx Announce Ancillary Safety Issue
Alnylam Reports Progress on Investigational Subcutaneous Hemophilia…
Dec 13, 2016
Industry
Pfizer to Build Gene Therapy Facility in North Carolina
Spark Reports Positive Data from Hemophilia B Gene Therapy Program
Dec 7, 2016
Industry
uniQure Announces Updated Hemophilia B Gene Therapy Data
Sangamo Reports Hemophilia A Gene Therapy Progress at ASH
Dec 7, 2016
Industry
Octapharma Announces Two New Clinical Trials
Octapharma Announces Two New Clinical Trials
Nov 28, 2016
Industry
Sangamo’s SB-FIX Receives FDA's Orphan Drug Status
Sangamo’s SB-FIX Receives FDA's Orphan Drug Status
Sep 8, 2016
Industry
Bayer Announces 2016 BHAP Recipients
Bayer Announces 2016 BHAP Recipients
Aug 31, 2016
Industry
Novo Presents Initial Results of B-HERO-S Study
Novo Presents Initial Results of B-HERO-S Study
Aug 3, 2016
Industry
BioMarin Reports Continued Progress in Clinical Trial for Hemophilia A Gene Therapy
Spark Announces New Data on Its FIX Gene Therapy
Jun 16, 2016
Industry
UniQure Escalates Hemophilia B Gene Therapy Manufacturing Site
UniQure’s Gene Therapy Performing well in Hemophilia B Trial
Jun 14, 2016
Industry
Shire/Baxalta Complete $32 Billion Merger
Shire/Baxalta Complete $32 Billion Merger
Jun 7, 2016
Industry
ACE910 Shows Positive Efficacy and Safety Data in Phase I Trial
ACE910 Shows Positive Efficacy and Safety Data in Phase I Trial
Jun 6, 2016
Industry
Sangamo Reports Early Progress in Pre-Clinical Hemophilia A Gene Therapy Studies
Sangamo Reports Early Progress in Pre-Clinical Hemophilia A Gene…
May 10, 2016
Industry
Preliminary Data Show Progress for BioMarin’s Factor VIII Gene Therapy
Preliminary Data Show Progress for BioMarin’s Factor VIII Gene Therapy
Apr 21, 2016
Industry
FDA Accepts License Application and Grants Priority Review for Emicizumab
FDA Approves Generic Version of Tranexamic Acid
Mar 4, 2016

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