U.S. Hemophilia Treatment Centers (HTCs) are once again participating in the National HTC Patient Satisfaction Survey (PSS). It is launched every three years to help glean valuable feedback from HTC patients and caregivers, with the overarching goal of enhancing care. Participants in the PSS often include people with hemophilia, von Willebrand disease, and other inherited bleeding disorders.


The current PSS is open to affected individuals/caregivers who received care at an HTC in 2023. You can complete and submit feedback online or by paper in both English and Spanish. 


Visit www.htcsurvey.com to take the anonymous survey and access additional information, including answers to frequently asked questions. Please note that the survey will close on May 31, 2024.


Also visit www.htcsurvey.com/results for insights and key findings from previous surveys conducted in 2015, 2018, and 2021.