
Honoring the Legacy of Jason Fulton
Jason Fulton lived with courage, purpose, and joy. Driven and vibrant, he pursued a rich, meaningful life despite complications from his hemophilia diagnosis and treatment. Jason believed deeply in standing up for others and creating opportunity - even when the path was difficult. Today, his legacy lives on through the National Youth Leadership Institute (NYLI) and every young leader empowered in his name.
In 2025, the Jason Fulton Memorial Leadership Fund invested $10,000 enabling the NYLI cohort to attend Washington Days, giving aspiring advocates firsthand experience engaging with policymakers and championing the needs of the bleeding disorders community. Through this support, Jason's passion for advocacy and leadership continues - ensuring tomorrow's young leaders have access to real-world opportunities that create lasting change.
"NYLI helped me find my voice. Being in Washington showed me that advocacy is powerful - and that one person's legacy can inspire many others to lead." - NYLI member
Memorial and tribute gifts in honor of Jason Fulton continue this important work, empowering young leaders to advocate, serve, and create change - just as Jason did throughout his life.
Learn more about the NYLI Program and our current cohort.