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You are cordially invited to participate in a Meet-Up Event for people affected by ultra-rare inherited bleeding disorders (URBDs) being held on September 9 – 11 at the Marriott SW, in Burr Ridge, Illinois. We know that you face significant challenges compared to the broader bleeding disorders community. Your disorders are often unknown to all but the most specialized hematologists. Unfortunately, even after diagnosis, those with URBDs report that you continue to feel isolated and at a disadvantage compared to other with more common bleeding disorders. This event is an important step in identifying and addressing the of this community. It will help build a healthier and stronger experience for you and everyone who takes part in this important weekend. We look forward to coming together to building stronger community – no matter how small – to learn empowerment strategies, overcome healthcare barriers, and create the resources needed to live life as others with bleeding disorders do today.