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Date

Time

2:00 pm
This session explores the latest advances and challenges in research focused on children and adolescents with inherited bleeding disorders, such as hemophilia, von Willebrand disease, and other rare conditions. Our expert speakers will discuss current findings, innovative treatments, and the impact on quality of life for young patients. A LEE speaker will also share their lived experience, offering unique insights into the realities of managing these disorders in a family setting.
 

Speakers: 

Shannon Carpenter, MD, MS
Lauren Amos, MD, MS
Cedena Hartley

 

About the Speakers:

Lauren Amos, MD

Lauren Amos, MD, MS
Pediatric Hematologist-Oncologist
Children's Mercy Hospital 
Kansas City, MO

Lauren Amos, MD,MS  is an Associate Professor of Pediatrics, University of Missouri-Kansas City School of Medicine and Education Associate Professor of Pediatrics, University of Kansas School of Medicine. Dr. Amos earned her MD at the University of Kansas School of Medicine and completed both her residency in Pediatrics and fellowship training in Pediatric Coagulation Medicine at Children’s Mercy Kansas City. Dr. Amos joined Children’s Mercy Hospital HTC Staff in 2019. She is the Program Director for the Pediatric Hematology Oncology Fellowship at Children’s Mercy.

Dr. Amos has published numerous research articles with a focus on women and girls with bleeding disorders. Throughout her career Dr. Amos has received numerous honors and awards. She is currently a Board Member of HTRS and the FWGBD Learning Action Network Research and Publications Subcommittee Co-Chair.

 

Shannon Carpenter, MD, MS

Shannon Carpenter, MD, MS

Dr. Carpenter's research focuses on bleeding and clotting disorders. She is the Associate Director of the Kansas City Comprehensive Hemophilia Treatment Center, Director of the Anticoagulation Management Program, Program Director of the Coagulation Medicine Fellowship and Division Director of Hematology/Oncology/BMT at Children’s Mercy Hospital. She has been conducting clinical research for over 15 years, ranging from investigator-initiated grant funded research to multicenter clinical trials. She has also served as the primary research mentor for several residents, fellows, and junior faculty. She has published multiple collaborative manuscripts regarding the risk for and prevention of venous thromboembolism in hospitalized pediatric patients. She is currently leading a national trial investigating untreated children with hemophilia. Additionally, she is involved in studies of bleeding disorders in women and girls and rare bleeding disorders. Dr. Carpenter also collaborates with Child Abuse Pediatricians regarding the work-up for bleeding disorders in children suspected of being abused.

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