Date
Time
Speakers: Kate Khair, PhD, CEO and Director of Research, Haemnet LTD; Simon Fletcher, PhD, RGN, Postdoctoral Researcher, Oxford University; Peter Zdziarski, President, Glanzmanns Research Foundation
People with Glanzmann thrombasthenia (GT) face significant and often overlooked challenges. This webinar will discuss the results of the Glanzmann 360 study, a UK-based patient-reported research project that captured the day-to-day impact of people living with the rare disorder. We will discuss the issues faced by people who live with this order, including difficulty in diagnosis and treatment, the need for improved medical and psychological treatment and support, increased awareness of these needs among healthcare professionals, and research into developing comprehensive care models that address medical and psychosocial needs of people with GT. We will also learn about how the Glanzmann's Research Foundation is working to raise awareness, support families, and improve research into GT in the US.