Sammie is a highly regarded member of the inheritable bleeding disorders community and a lived experience expert. Diagnosed with von Willebrand disease (VWD) at the age of 32, she navigates her personal journey with remarkable resilience. Beyond being a person with VWD, Sammie is a devoted mother to a daughter with VWD and another with both factor VII deficiency and VWD.
Her significant contributions extend to the development of the National Research Blueprint (NRB) project, where she serves as the co-chair for the LEE working group and as a steering committee member. Sammie played a pivotal role in shaping the term "Lived Experience Experts" and recognizes the importance of active involvement in research to enhance the lives of individuals affected by inheritable bleeding disorders.
Sammie currently serves as vice president of the Bleeding Disorders Alliance of Illinois. Her extensive involvement in the community reflects her commitment to making a positive impact on the lives of those affected by bleeding disorders. Beyond her professional commitments, Sammie is a passionate advocate, devoted mother, loving wife, and steadfast friend.