NBDF has numerous publications, brochures and tools available here for download or if available print versions can be ordered through Brainstorm Print, our printing and shipping partner, via the NBDF Portal. These engaging resources span across different bleeding disorders and can be used for patients and families, or sharing with schools, workplaces and extended family members and friends.
NBDF encourages redistribution of its publications for educational purposes by other nonprofit bleeding disorders organizations. NBDF produced materials, either printed publications or website content, cannot be translated or reproduced in whole or in part without prior written permission from NBDF.
NOTE: Some of these materials were created prior to the organization's rebrand from the National Hemophilia Foundation to the National Bleeding Disorders Foundation. Though some items may reflect NHF branding, they are likely still relevant. For questions on any specific materials, email info@bleeding.org.
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Diario de Atención Médica
Lista de preguntas que los consumidores deben tener en cuenta antes (uno o dos meses) de una visita al médico.
Better You Know Signs and Symptoms 2
This postcard can be used to raise awareness about bleeding disorders, especially for those that are undiagnosed.
What is Mild Hemophilia?
Written in a straightforward and accessible style, this brochure is designed to help educate young readers about the mechanisms behind coagulation, prolonged bleeding and inheritance. It provides information on common myths, tips on prevention and basic treatment options.
Mental Health Hotlines
This list is for individuals and families affected by bleeding disorders who are in crisis. Individuals experiencing a life-threatening situation or having thoughts of self-harm or harming others should seek immediate assistance by calling 9-1-1 or going to the nearest emergency department.
Registro de Pruebas de Laboratorio
Este formulario registra las pruebas solicitadas por un profesional sanitario, cuándo se realizaron y los resultados de las mismas.
Role of New Prolonged Half-Life Clotting Factors in Hemophilia
“Role of New Prolonged Half-Life Clotting Factors in Hemophilia,” which was developed independently by an NHF working group, includes a basic explanation of the differences between these newer products and traditional factor therapies, and the treatment choice implications for consumers. It also provides a description and helpful graphic representation of factor half-life.
Folleto de la Niñas Adolescente
Este folleto abarca temas básicos sobre la pubertad, los cambios, la menstruación, los trastornos hemorrágicos y un glosario terminológico.
Let's Talk Puberty: A Guide for Girls with Bleeding Disorders
This book discusses the puberty experience for girls with bleeding disorders ages 9-14 in a approachable and engaging format. Topics include, ‘what is puberty’, a basic overview on the various bleeding disorders, the physical and emotional aspects of puberty, and how to have conversations with friends and loved ones.
Nosebleeds
Created in collaboration with NHF's Nursing Working Group and nurses from Canada, this publication describes the unique issues a person with a bleeding disorder faces with a nosebleed. Causes of nosebleeds, basic treatment, when to consult the bleeding disorder treatment center and prevention issues are discussed.
The Child with a Bleeding Disorder: Guidelines for Finding Childcare
This publication provides a helpful guide for parents of children with bleeding disorders as they make choices about in-home care, cooperative childcare, center-based childcare and choosing a daycare center. Also included is a checklist of provider services and helpful hints for babysitters and other family caretakers.
Lo Que las Mujeres y las Niñas Deben Saber
Este folleto es una guía de pruebas de laboratorio, instrumentos de detección y exámenes de salud. Incluye un amplio glosario terminológico.
Better You Know Síntomas 1
Esta postal puede utilizarse para concienciar sobre los trastornos hemorrágicos, especialmente a quienes no están diagnosticados.
Nosebleeds (Spanish)
Created in collaboration with NHF's Nursing Working Group and nurses from Canada, this publication describes the unique issues a person with a bleeding disorder faces with a nosebleed. Causes of nosebleeds, basic treatment, when to consult the bleeding disorder treatment center and prevention issues are discussed.