The sections below represent frequently asked questions, or “FAQs,” received by HANDI. Because they are inspired by actual questions posed by HANDI patrons, they reflect a wide range of practical topics. Please note that we will continue to add new FAQs as we continue to meet the informational needs of a growing and diverse inheritable bleeding disorders community.


Established more than 30 years ago, HANDI continues to be a trusted resource for those affected by inheritable bleeding disorders, healthcare professionals, and the general public. HANDI provides information and referrals to hemophilia treatment centers, local chapters, and other support organizations throughout the United States and abroad.

There are several easy ways to reach HANDI:

  1. Submit an online request for information by completing the form below:
    • In order to provide you with the most appropriate information and/or referral we ask that you please use the open text box to provide specific details on your information request before submitting your message.
  2. Email us directly:
  3. Call 1.800.42HANDI. (or 800.424.2634, extension 2). Voice mail is available and checked periodically.

The HANDI Team looks forward to hearing from you. Initial response replies can take up to 48 hours depending on current intake flow. 

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NBDF does not give medical advice nor engage in the practice of medicine. NBDF under no circumstances recommends a particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment. All requests for information submitted to HANDI are kept strictly confidential.

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